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Every Cripple a Superhero
Par Christoph Keller. 2019
'Fascinating ... compelling ... very funny' Sunday Times'A defiant call to arms ... affecting ... lingers long in the memory…
after its final page' Morning Star'A skilful act of literary witness, sharp, moving and funny' Joanne Limburg 'Christoph Keller ... ranks among the great Swiss writers' Neue Zürcher ZeitungMost stories of disability follow a familiar pattern: Life Before Accident. Life After Accident. For Christoph Keller, it was different: his childhood diagnosis with a form of Spinal Muscular Atrophy only revealed what had been with him since birth. SMA III, the 'kindest one', allows those who have it to live a long life, and it progresses slowly. There is no cure. By the age of 25, he had to use a wheelchair some of the time. 'There were two of me: Walking Me. Rolling Me.' By 32, he could still walk into a restaurant with a cane or on somebody's arm. At 45, 'Rolling Me' took over altogether.Intimate, absurdist and winningly frank, Every Cripple a Superhero is at once a memoir of life with a progressive disorder, and a profound exploration of the challenges of loving, being loved, and living a public life - navigating restaurants, aeroplanes, museums and artists' retreats - in a world not designed for you. Threaded throughout are Keller's own photographs of the unexpected beauty found in puddle-filled 'curb cuts', the pavement ramps that, left to disintegrate, form part of the urban obstacle course. Those puddles become portals into a different, truer city; and, as they do, so this book - told with humour and immense grace - begins to uncover a truer world: one where the 'normal' is not normal, where disability is far more widespread than we might think, and where there always exist, just alongside our own, the lives of everyday superheroes.Blade Runner
Par Oscar Pistorius. 2012
Blade Runner is the inspirational memoir of Oscar Pistorius. Discover his incredible, emotional journey from disabled toddler to international sports…
phenomenon.At eleven months old, Oscar Pistorius had both his legs amputated below the knee. His mother wrote a letter to be read by Oscar when he was grown up: 'A loser is not one who runs last in the race. It is the one who sits and watches, and has never tried to run.' On discovering that their son had been born with no fibulae, Oscar's parents made the difficult decision to have both his legs amputated, giving him the best possible chance of a normal life. Oscar received his first pair of prosthetic legs at just seventeen months, made specifically for him. From then on he became invincible: running, climbing and, with the encouragement of his older brother, getting into any mischief he could. Throughout the course of his life, Oscar has battled to overcome extraordinary difficulties to prove that, with the right attitude, anything is possible. Blade Runner charts the extraordinary development of one of the most gifted sportsmen and inspirational figures on the planet - from immobilised child to world-class sprinter.From the disability rights advocate and creator of the #DisabledAndCute viral campaign, a thoughtful, inspiring, and charming collection of essays…
exploring what it means to be black and disabled in a mostly able-bodied white America. Keah Brown loves herself, but that hadn&’t always been the case. Born with cerebral palsy, her greatest desire used to be normalcy and refuge from the steady stream of self-hate society strengthened inside her. But after years of introspection and reaching out to others in her community, she has reclaimed herself and changed her perspective.In The Pretty One, Brown gives a contemporary and relatable voice to the disabled—so often portrayed as mute, weak, or isolated. With clear, fresh, and light-hearted prose, these essays explore everything from her relationship with her able-bodied identical twin (called &“the pretty one&” by friends) to navigating romance; her deep affinity for all things pop culture—and her disappointment with the media&’s distorted view of disability; and her declaration of self-love with the viral hashtag #DisabledAndCute.By &“smashing stigmas, empowering her community, and celebrating herself&” (Teen Vogue), Brown and The Pretty One aims to expand the conversation about disability and inspire self-love for people of all backgrounds.Beryl: The Making of a Disability Activist
Par Dustin Galer. 2023
Beryl Potter was a reserved working-class mother of three living a decent life, or so it seemed, when a harmless…
slip and fall marked the unravelling of everything that she had known about herself and the world around her. Over the course of six years, she endured unimaginable pain. As doctors raced to save her life, her limbs and eyesight were taken from her one by one. In the span of a few years, she lost nearly half her body, her financial security, her home, her husband, and any semblance of a recognizable future. A survivor of more than one hundred surgeries, a dangerous opioid addiction, and multiple suicide attempts, Beryl Potter devoted herself to bettering the lives of other people with disabilities and made a tremendous contribution to disability awareness from the 1970s to 1990s. In this unparalleled biography, Dustin Galer demonstrates how Beryl Potter seemed to crack the code of the social system that oppressed her. By wading into the weeds of her complicated life before and after her accident, Galer leaves readers with a complex portrait of a woman who defied and challenged gender and disability norms of her time, paving the way for disability justice.Sam and Chester: How a Mischievous Pig Transformed the Life of My Autistic Son
Par Jo Bailey-Merritt. 2016
When Sam Bailey-Merritt was just two years old, almost overnight he lost the ability to communicate or function. His mother,…
Jo, was at a loss as to what to do as she saw her son grow increasingly isolated and begin to suffer from uncontrollable meltdowns. Eventually, Sam was diagnosed with autism.Sam's condition continued to worsen and, just when Jo had all but given up hope of being able to help him, the family went on a day trip to a nearby miniature pig farm. Sam immediately bonded with a tiny ginger piglet called Chester, who stood sad and alone, apart from the rest of the litter. The connection between the boy and the animal was immediate and their unusual friendship blossomed from the moment the family brought Chester home. The tiny pig refused to leave Sam's side - it was as if he knew that Sam needed a friend. And, for the first time in five years, Jo saw her son really laugh.While Sam's confidence grew, Chester grew in a different way: the micro pig that was supposed to become the size of a Cocker Spaniel in fact ballooned to three times that size - with hilarious consequences for the family! Chester has turned Sam's life around. He now has the ability to communicate his feelings, make friends and is caring and kind towards others.Sam and Chester is the heart-warming story of how a teacup-sized ginger pig helped to transform the life of a boy with autism. It is the emotional story of a mother's fight to win back her son.Christy Brown: The Life That Inspired My Left Foot
Par Georgina Louise Hambleton. 2007
Christy Brown was severely disabled with cerebral palsy, unable to use any part of his body other than his left…
foot. Doctors said he was a 'mental defective' and that he would never be able to lead any kind of normal life; Christy proved them wrong.His mother taught him to write using chalk on the worn floor of their small home, and Christy grew into a talented artist and writer. His 1954 memoir My Left Foot was made into an Oscar-winning film starring Daniel Day-Lewis, while his bestselling novel Down All the Days was described by the Irish Times as 'the most important novel since Ulysses'.Using previously unpublished letters and poems, this first authorised biography marks Christy Brown's importance as a writer and celebrates his indomitable spirit. His story proves that, with hope and determination, almost impossible odds can be overcome.Sitting Pretty: The View from My Ordinary Resilient Disabled Body
Par Rebekah Taussig. 2020
A memoir-in-essays from disability advocate and creator of the Instagram account @sitting_pretty Rebekah Taussig, processing a lifetime of memories to…
paint a beautiful, nuanced portrait of a body that looks and moves differently than most.Growing up as a paralyzed girl during the 90s and early 2000s, Rebekah Taussig only saw disability depicted as something monstrous (The Hunchback of Notre Dame), inspirational (Helen Keller), or angelic (Forrest Gump). None of this felt right; and as she got older, she longed for more stories that allowed disability to be complex and ordinary, uncomfortable and fine, painful and fulfilling.Writing about the rhythms and textures of what it means to live in a body that doesn’t fit, Rebekah reflects on everything from the complications of kindness and charity, living both independently and dependently, experiencing intimacy, and how the pervasiveness of ableism in our everyday media directly translates to everyday life. Disability affects all of us, directly or indirectly, at one point or another. By exploring this truth in poignant and lyrical essays, Taussig illustrates the need for more stories and more voices to understand the diversity of humanity. Sitting Pretty challenges us as a society to be patient and vigilant, practical and imaginative, kind and relentless, as we set to work to write an entirely different story.What the **** is Normal?!
Par Francesca Martinez. 2014
If you grow up in a world where wrinkles are practically illegal, going bald is cause for a mental breakdown,…
and women over size zero are encouraged to shoot themselves (immediately), what the hell do you do if you’re, gasp … DISABLED? Whatever body you’re born into, the pressure to be normal is everywhere. But have you ever met a normal person? What do they look like? Where do they live? What do they eat for breakfast?And what the **** does normal mean anyway?This is the award-winning wobbly comedian Francesca Martinez’s funny, personal, and universal story of how she learned to stick two shaky fingers up to the crazy expectations of a world obsessed with being ‘normal’.The astonishing true story of trust, pain, becoming lost, and finding a way back to yourself despite it all'An intimate…
preservation of a moment in time, full of personality' THE TIMES__________Life is beautiful - even in the dark . . .Oliver Mol was happily drifting through his twenties when the migraine exploded in his head.Suddenly, he could barely function. He felt marooned. Nothing helped. Yet he was desperate to save himself.Then he found the trains. The job of train guard has intense moments of strict, regimented activity in between periods of calm serenity. It was just what Oliver needed. Not only could he do this, but also it might be a way out.Train Lord is the story of Oliver's extraordinary recovery. A journey back into the light . . .__________'Tender, vital and quietly hopeful: a tale of remaking' Guardian'Rude, raw, visceral, painful and wildly funny' Saga 'Intense and humble, Train Lord won my heart' Australian Book ReviewBut Everyone Feels This Way: How an Autism Diagnosis Saved My Life
Par Paige Layle. 2024
Autism acceptance activist and TikTok influencer Paige Layle shares her deeply personal journey to diagnosis and living life autistically. &“For far…
too long, I was told I was just like everyone else. But knew it couldn&’t be true. Living just seemed so much harder for me. This wasn&’t okay. This wasn&’t normal. This wasn&’t functioning. And it certainly wasn&’t fine.&” Paige Layle was normal. She lived in the countryside with her mom, dad, and brother Graham. She went to school, hung out with friends, and all the while everything seemed so much harder than it needed to be. A break in routine threw off the whole day. If her teacher couldn't answer &“why&” in class, she dissolved into tears, unable to articulate her own confusion or explain her lack of control. But Paige was normal. She smiled in photos, picked her feet up when her mom needed to vacuum instead of fleeing the room, and earned high grades. She had friends and loved to perform in local theater productions. It wasn&’t until a psychiatrist said she wasn&’t doing okay, that anyone believed her. In But Everyone Feels This Way, Paige Layle shares her story as an autistic woman diagnosed late. Armed with the phrase &“Autism Spectrum Disorder&” (ASD), Paige challenges stigmas, taboos, and stereotypes while learning how to live her authentic, autistic life.A Life Impossible: Living with ALS: Finding Peace and Wisdom Within a Fragile Existence
Par Steve Gleason, Jeff Duncan. 2024
From NFL player Steve Gleason, a powerful, inspiring memoir of love, heartbreak, resilience, family, and remarkable triumph in the face…
of ALSIn 2011, three years after leaving the NFL, Steve Gleason was diagnosed with ALS, a terminal disease that takes away the ability to move, talk, and breathe. Doctors gave him three years to live. He was thirty-three years old. As Steve says, he is now ten years past his expiration date.His memoir is the chronicle of a remarkable life, one filled with optimism and joy, despite the trauma and pain and despair he has experienced. Writing using eye-tracking technology, Gleason covers his pre-ALS life through the highs and lows of his NFL career with the New Orleans Saints, where he made one of the most memorable plays in Saints history, leading to a victory in the first post-Katrina home game, uplifting the city, making him a hero, and reflected in a nine-foot bronze statue outside the Superdome. Then came his heartbreaking diagnosis. Gleason lost all muscle function, he now uses Stephen Hawking-like technology to communicate, and breathes with the help of a ventilator. This book captures Gleason and his wife Michel&’s unmatched resilience as they reinvent their lives, refuse to succumb to despair, and face his disease realistically and existentially.This unsparing portrait argues that a person's true strength does not reside solely in one&’s body but also in the ability to face unfathomable adversity and still be able to love and treasure life.Disability Intimacy: Essays on Love, Care, and Desire
Par Edited by Alice Wong. 2024
The much-anticipated follow up to the groundbreaking anthology Disability Visibility: another revolutionary collection of first-person writing on the joys and…
challenges of the modern disability experience, and intimacy in all its myriad forms.What is intimacy? More than sex, more than romantic love, the pieces in this stunning and illuminating new anthology offer broader and more inclusive definitions of what it can mean to be intimate with another person. Explorations of caregiving, community, access, and friendship offer us alternative ways of thinking about the connections we form with others—a vital reimagining in an era when forced physical distance is at times a necessary norm. But don't worry: there's still sex to consider—and the numerous ways sexual liberation intersects with disability justice. Plunge between these pages and you'll also find disabled sexual discovery, disabled love stories, and disabled joy. These twenty-five stunning original pieces—plus other modern classics on the subject, all carefully curated by acclaimed activist Alice Wong—include essays, photo essays, poetry, drama, and erotica: a full spectrum of the dreams, fantasies, and deeply personal realities of a wide range of beautiful bodies and minds. Disability Intimacy will free your thinking, invigorate your spirit, and delight your desires.The Shaking Woman, or A History of My Nerves
Par Siri Hustvedt. 2009
In this unique neurological memoir Siri Hustvedt attempts to solve her own mysterious conditionWhile speaking at a memorial event for…
her father in 2006, Siri Hustvedt suffered a violent seizure from the neck down. Despite her flapping arms and shaking legs, she continued to speak clearly and was able to finish her speech. It was as if she had suddenly become two people: a calm orator and a shuddering wreck. Then the seizures happened again and again. The Shaking Woman or A History of My Nerves tracks Hustvedt's search for a diagnosis, one that takes her inside the thought processes of several scientific disciplines, each one of which offers a distinct perspective on her paroxysms but no ready solution. In the process, she finds herself entangled in fundamental questions: What is the relationship between brain and mind? How do we remember? What is the self? During her investigations, Hustvedt joins a discussion group in which neurologists, psychiatrists, psychoanalysts, and brain scientists trade ideas to develop a new field: neuropsychoanalysis. She volunteers as a writing teacher for psychiatric in-patients at the Payne Whitney clinic in New York City and unearths precedents in medical history that illuminate the origins of and shifts in our theories about the mind-body problem. In The Shaking Woman, Hustvedt synthesizes her experience and research into a compelling mystery: Who is the shaking woman? In the end, the story she tells becomes, in the words of George Makari, author of Revolution in Mind, "a brilliant illumination for us all."