Résultats de recherche de titre
Articles 1 à 20 sur 33
Beryl: The Making of a Disability Activist
Par Dustin Galer. 2023
The story of a mid-century working-class housewife whose extraordinary physical transformation empowered her to become a dynamic social activist who…
fueled a movement to create a more inclusive future for people with disabilities.A Dangerous Country: An American Elegy
Par Ron Kovic. 2024
Ron Kovic, author of Born on the Fourth of July and one of the country's most powerful and passionate antiwar…
voices, completes his Vietnam Trilogy with this poignant, inspiring, and deeply personal elegy to America. WHEN EIGHTEEN-YEAR-OLD RON KOVIC enlisted in the United States Marine Corps in 1964, he couldn’t foresee that he would return from Vietnam paralyzed and in a wheelchair for life. His best-selling 1976 memoir Born on the Fourth of July became an antiwar classic and was adapted into an Oscar-winning film starring Tom Cruise as Kovic. His follow-up, Hurricane Street, chronicled his advocacy for Vietnam veterans’ rights. A Dangerous Country: An American Elegy completes Kovic’s Vietnam Trilogy, delving deep into his long and often agonizing journey home from war and eventual healing, forgiveness, and spiritual redemption. The book opens with Kovic’s never-before-revealed Vietnam diary (July 7, 1967–July 26, 1968). His entries from this period portray a patriotic young soldier with a strong moral and religious conscience. Kovic then recalls his political awakening after his return from Vietnam confined to a wheelchair following his horrific injury. He also chronicles the tremendous guilt he feels over his accidental killing of a fellow Marine while on patrol. This killing psychologically torments him as much as his severe disability. After years of social, political, and sexual turmoil—and on the brink of suicide—Kovic experiences a powerful epiphany that gives him a reason and purpose to live; a renewed faith and strength to carry on. Although his trauma is severe, his third memoir is ultimately the inspirational story of a survivor finding a way to rise above his depression and despair, forgiving his enemies and himself, and growing deeply committed to a new life.A Woman of No Importance: The Untold Story of Virginia Hall, WWII's Most Dangerous Spy
Par Sonia Purnell. 2019
'A METICULOUS HISTORY THAT READS LIKE A THRILLER' BEN MACINTYRE, TEN BEST BOOKS TO READ ABOUT WORLD WAR II An…
astounding story of heroism, spycraft, resistance and personal triumph over shocking adversity. 'A rousing tale of derring-do' THE TIMES * 'Riveting' MICK HERRON * 'Superb' IRISH TIMES THE NEW YORK TIMES BESTSELLERIn September 1941, a young American woman strides up the steps of a hotel in Lyon, Vichy France. Her papers say she is a journalist. Her wooden leg is disguised by a determined gait and a distracting beauty. She is there to spark the resistance.By 1942 Virginia Hall was the Gestapo's most urgent target, having infiltrated Vichy command, trained civilians in guerrilla warfare and sprung soldiers from Nazi prison camps. The first woman to go undercover for British SOE, her intelligence changed the course of the war - but her fight was still not over. This is a spy history like no other, telling the story of the hunting accident that disabled her, the discrimination she fought and the secret life that helped her triumph over shocking adversity.'A cracking story about an extraordinarily brave woman' TELEGRAPH'Gripping ... superb ... a rounded portrait of a complicated, resourceful, determined and above all brave woman' IRISH TIMESWINNER of the PLUTARCH AWARD FOR BEST BIOGRAPHYDon't Leave Me This Way: Or When I Get Back on My Feet You'll Be Sorry
Par Julia Fox Garrison. 2006
Julia Fox Garrison refused to listen to the professionals she called Dr. Jerk and Dr. Panic, who—after she suffered a…
massive, debilitating stroke at age thirty-seven—told her she'd probably die, or to Nurse Doom, who ignored her emergency call button. Instead she heeded the advice of kind, gifted Dr. Neuro, who promised her he would "treat your mind as well as your body." Julia figured if she could somehow manage to get herself into a wheelchair, at least she'd always find parking. But after many, many months of hospitalization and rehab—with the help of family, friends, and her own indomitable spirit—Julia not only got into a wheelchair, but she got back out.Don't Leave Me This Way is the funny, inspiring, profoundly moving true story of a woman's fight for her life and dignity—and her determined quest to awaken an entrenched, unfeeling medical community to the fact that there's always a human being inside every patient.Beautiful People: My Thirteen Truths About Disability
Par Melissa Blake. 2024
Well-known disability activist and social media influencer Melissa Blake offers a frank, illuminating memoir and a call to action for…
disabled people and allies. In the summer of 2019, journalist Melissa Blake penned an op-ed for CNN Opinion. A conservative pundit caught wind of it, mentioning Blake&’s work in a YouTube video. What happened next is equal parts a searing view into society, how we collectively view and treat disabled people, and the making of an advocate. After a troll said that Blake should be banned from posting pictures of herself, she took to Twitter and defiantly posted three smiling selfies, all taken during a lovely vacation in the Big Apple:I wanted desperately to clap back at these vile trolls in a way that would make a statement, not only about how our society views disabilities, but also about the toxicity of our strict and unrealistic beauty standards. Of course I knew that posting those selfies wasn't going to erase the nasty names I'd been called and, the chances were, they would never even see my tweet, but that didn't matter. I wasn't doing it for them; I was doing it for me and every single disabled person who has been bullied before, online and in real life. When people mock how I look, they're not just insulting me. They're insulting all disabled people. We're constantly told that we're repulsive and ugly and not good enough to be seen. This was me pushing back against that toxic, ableist narrative.For the first time, I felt like I was doing something empowering, taking back my power and changing the story. Her tweet went viral, attracting worldwide media attention and interviews with the BBC, USA Today, the Chicago Tribune, PEOPLE magazine, Good Morning America and E! News. Now, in her manifesto, Beautiful People, Blake shares her truths about disability, writing about (among other things): the language we use to describe disabled people ableism, microaggressions, and their pernicious effects what it's like to live in a society that not only isn't designed for you, but actively operates to render you invisible her struggles with self‑image and self‑acceptance the absence of disabled people in popular culture why disabled people aren't tragic heroes Blake also tells the stories of some of the heroes of the disability rights movement in America, in doing so rescuing their incredible achievements from near total obscurity. Highlighting other disabled activists and influencers, Blake&’s work is the calling card of a powerful voice—one that has sparked new, different, better conversations about disability.Narrating the Many Autisms: Identity, Agency, Mattering
Par Anna Stenning. 2023
Autism is a profoundly contested idea. The focus of this book is not what autism is or what autistic people…
are, but rather, it grapples with the central question: what does it take for autistic people to participate in a shared world as equals with other people? Drawing from her close reading of a range of texts, by autistic authors, filmmakers, bloggers, and academics, Anna Stenning highlights the creativity and imagination in these accounts and also considers the possibilities that emerge when the unexpected and novel aspects of experience are attended to and afforded their due space. Approaching these narrative accounts in the context of both the Anthropocene and neoliberalism Stenning unpacks and reframes understandings about autism and identity, agency and mattering, across sections exploring autistic intelligibility, autistic sensibility, and community-oriented collaboration and care. By moving away from the non-autistic stories about autism that have, over time, dominated public conception of the autistic experience and relationships, as well as the cognitive and psychoanalytic paradigms that have reduced autism and autistic people to a homogeneous group, the book instead reveals the multiplicity of autistic subjectivities and their subsequent understandings of oppression. It calls on readers to listen to what autistic people have to say about the possibilities of resistance and solidarity against intersecting currents and eddies of power, which endanger all who challenge the neoliberal conception of Life. A stirring and meaningful departure from atomized accounts of neurological difference, Narrating the Many Autisms ponders big questions about its topic and finds clarity and meaning in the sense-making practices of autistic individuals and groups. It will appeal to scholarly readers across the fields of disability studies, cultural studies, critical psychology, sociology, anthropology, and literature. The Open Access version of this book, available at http://www.taylorfrancis.com, has been made available under a Creative Commons [Attribution-Non Commercial-No Derivatives (CC-BY-NC-ND)] 4.0 license.Zenith Man: Death, Love, and Redemption in a Georgia Courtroom
Par McCracken Poston Jr.. 2024
&“Wildly entertaining…. Zenith Man By McCracken Poston, Jr. is a true crime book but the events described seems more like…
a John Grisham novel.&” —Mystery Tribune Like a nonfiction John Grisham thriller with echoes of Rainman, Just Mercy, and a captivating smalltown Southern setting, this is the fascinating true story—sometimes humorous, sometimes heartbreaking—of an idealistic young lawyer determined to free an innocent neurodivergent man accused of murdering the wife no one knew he had. An inspiring argument for compassion in the pursuit of true justice for readers of Midnight in the Garden of Good and Evil and Just Mercy.Was this small-town TV repair man &“a harmless eccentric or a bizarre killer&” (Atlanta Journal Constitution). For the first time, Alvin Ridley&’s own defense attorney reveals the inside story of his case and trial in an extraordinary tale of friendship and an idealistic young attorney&’s quest to clear his client&’s name—and, in the process, rebuild his own life. In October 1997, the town of Ringgold in northwest Georgia was shaken by reports of a murder in its midst. A dead woman was found in Alvin Ridley&’s house—and even more shockingly, she was the wife no one knew he had. McCracken Poston had been a state representative before he lost his bid for U.S. Congress and returned to his law career. Alvin Ridley was a local character who once sold and serviced Zenith televisions. Though reclusive and an outsider, the &“Zenith Man,&” as Poston knew him, hardly seemed capable of murder. Alvin was a difficult client, storing evidence in a cockroach-infested suitcase, unwilling to reveal key facts to his defender. Gradually, Poston pieced together the full story behind Virginia and Alvin&’s curious marriage and her cause of death—which was completely overlooked by law enforcement. Calling on medical experts, testimony from Alvin himself, and a wealth of surprising evidence gleaned from Alvin&’s junk-strewn house, Poston presented a groundbreaking defense that allowed Alvin to return to his peculiar lifestyle, a free man. Years after his trial, Alvin was diagnosed with autism spectrum disorder, a revelation that sheds light on much of his lifelong personal battle—and shows how easily those who don&’t fit societal norms can be castigated and misunderstood. Part true crime, part courtroom drama, and full of local color, Zenith Man is also the moving story of an unexpected friendship between two very different men that changed—and perhaps saved—the lives of both.Devout: A Memoir of Doubt
Par Anna Gazmarian. 2024
&“This moving memoir is always attuned to the possibilities of community and spiritual sustenance, even as it refuses to efface…
the struggles at its core—believing that this struggle, too, can be a thing of beauty.&” —Leslie Jamison, author of The RecoveringIn this revelatory memoir, Anna Gazmarian tells the story of how her evangelical upbringing in North Carolina failed to help her understand the mental health diagnosis she received, and the work she had to do to find proper medical treatment while also maintaining her faith. When Anna is diagnosed with bipolar disorder in 2011, she&’s faced with a conundrum: while the diagnosis provides clarity about her manic and depressive episodes, she must confront the stigma that her evangelical community attaches to her condition. Over the course of ten years, we follow Anna on her journey to reframe her understanding of mental health to expand the limits of what her religious practice can offer. In Devout: A Memoir of Doubt, Anna shows that the pursuing our emotional health and our spiritual well-being is one single mission and, in both cases, an act of faith.In her own words, the legendary American icon who overcame adversity to become a brilliant writer and powerful advocate for…
the disabled: The Story of My Life, The World I Live In, plus a dozen revealing personal letters, public speeches, essays, and moreHere, in a deluxe hardcover edition, is the inspiring story of an American icon—&“the greatest woman of our age,&” as Winston Churchill put it—in her own words.The Story of My Life (1903), published just before she became the first deaf-blind college graduate in the United States, brought Helen Keller worldwide fame, and has remained a touchstone for generations. Recounting her astonishing relationship with her teacher, Annie Sullivan, "the Miracle Worker," it offers still-vivid testimony of the transformative power of love and faith in overcoming adversity. Keller&’s underappreciated literary artistry and philosophical acumen are especially evident in the personal essays that make up The World I Live In (1908): exploring her own &“disability,&” she reflects profoundly on language, thinking, dreams, belief, and the relations between the senses. Also included are more than a dozen letters, speeches, essays, and other works—most of them from out-of-print, uncollected, or previously unpublished sources—charting more than 50 years of Keller&’s exemplary life and career. These pieces reveal her commitments to women&’s rights, workers&’ rights, racial justice, and peace, as well as her advocacy for the disabled. Kim E. Nielsen, Keller&’s biographer and the author of A Disability History of the United States, introduces the volume, which includes a 16-page portfolio of photographs and a newly researched chronology of Keller&’s life, along with authoritative notes and an index.Sick: A Memoir
Par Porochista Khakpour. 2018
A Best Book of the Year: Real Simple, Entropy, Mental Floss, Bitch Media, The Paris Review, and LitHub.Time Magazine's Best Memoirs of…
2018 • Boston Globe's 25 Books We Can't Wait to Read in 2018 • Buzzfeed's 33 Most Exciting New Books • GQ Best Non Fiction Book of 2018 • Bustle’s 28 Most Anticipated Nonfiction Books of 2018 list • Nylon’s 50 Books We Can’t Wait to Read in 2018 • Electric Literature’s 46 Books to Read By Women of Color in 2018 “Porochista Khakpour’s powerful memoir, Sick, reads like a mystery and a reckoning with a love song at its core. Humane, searching, and unapologetic, Sick is about the thin lines and vast distances between illness and wellness, healing and suffering, the body and the self. Khakpour takes us all the way in on her struggle toward health with an intelligence and intimacy that moved, informed, and astonished me.” — Cheryl Strayed, New York Times bestselling author of WildA powerful, beautifully rendered memoir of chronic illness, misdiagnosis, addiction, and the myth of full recovery.For as long as author Porochista Khakpour can remember, she has been sick. For most of that time, she didn't know why. Several drug addictions, some major hospitalizations, and over $100,000 later, she finally had a diagnosis: late-stage Lyme disease. Sick is Khakpour's grueling, emotional journey—as a woman, an Iranian-American, a writer, and a lifelong sufferer of undiagnosed health problems—in which she examines her subsequent struggles with mental illness and her addiction to doctor prescribed benzodiazepines, that both aided and eroded her ever-deteriorating physical health. Divided by settings, Khakpour guides the reader through her illness by way of the locations that changed her course—New York, LA, Santa Fe, and a college town in Germany—as she meditates on the physiological and psychological impacts of uncertainty, and the eventual challenge of accepting the diagnosis she had searched for over the course of her adult life. A story of survival, pain, and transformation, Sick candidly examines the colossal impact of illness on one woman's life by not just highlighting the failures of a broken medical system but by also boldly challenging our concept of illness narratives.Neuropsychological Consequences of COVID-19: Life After Stroke and Balint's Syndrome (ISSN)
Par Jwala Narayanan, Anjana Xavier, Jonathan Evans, Narinder Kapur, Barbara Wilson. 2024
Neuropsychological Consequences of COVID-19 focuses on Anjana’s journey as a COVID survivor following a brain injury that left her with…
a very rare neuropsychological syndrome called Balint’s syndrome, a disorder associated with difficulties in visual and spatial coordination. It is also the first book of its kind to provide a first-hand account from India on surviving brain injury, from diagnosis, recovery and rehabilitation, providing the therapeutic milieu in the Indian context and exploring cultural influences on rehabilitation.Written jointly by Anjana, her neuropsychologist and the international experts in the field of neuropsychology who were also involved in her diagnosis and care, the book highlights how COVID-19, a virus primarily affecting the respiratory system, can also result in a disabling brain injury. It describes Anjana’s recovery and the rehabilitation she received and provides a deeper understanding of this experience of a very rare condition through the views of Anjana herself. In addition, Anjana’s rehabilitation journey stumbles upon many important themes of rehabilitation including cultural sensitivity, personal identity, resilience, role of family and rehabilitation in a low to middle income country.This book is valuable reading for clinical and neuropsychologists, neurologists, other rehabilitation therapists including physiotherapists, occupational therapists, nurses and social work professionals, particularly those interested in cross cultural rehabilitation. It will also be of interest to students in these fields.Ugly: The Australian bestseller
Par Robert Hoge. 2013
The unique and inspiring story of a boy born with the odds against him and the family whose love and…
support helped him overcome incredible hardships.Robert Hoge was born with a giant tumour on his forehead, severely distorted facial features and legs that were twisted and useless. His mother refused to look at her son, let alone bring him home. But home he went, to a life that, against the odds, was filled with joy, optimism and boyhood naughtiness.Home for the Hoges was a bayside suburb of Brisbane. Robert's parents, Mary and Vince, knew that his life would be difficult, but they were determined to give him a typical Australian childhood. So along with the regular, gruelling and often dangerous operations that made medical history and gradually improved Robert's life, there were bad haircuts, visits to the local pool, school camps and dreams of summer sports.Ugly is Robert's account of that life, from the time of his birth to the arrival of his own daughter. It is a story of how the love and support of his family helped him to overcome incredible hardships. It is also the story of an extraordinary person living an ordinary life, which is perhaps his greatest achievement of all.'There is much to be learned from this ugly man whose spirit is truly beautiful' - Saturday Age'This is an incredible life story that will no doubt attract much publicity and discussion about beauty, ugliness and how we value ourselves' - Australian Bookseller + Publisher'If Robert Hoge reckons he belongs to the Ugly Club, then "ugly" must mean humour and courage, love and decency' - William McInnes'[A] frank, wry and funny memoir...' - Sunday Age'This fabulous easy-to-read tale is a treasure for anyone who has ever given their looks a second thought. Ugly offers a bracing perspective on life, love and the real definition of beauty. - Good ReadingAuthor BiographyRobert Hoge has worked as a journalist, a speechwriter, a science communicator for the CSIRO and a political advisor to the former Queensland Premier and Deputy Premier. He has had numerous short stories, articles, interviews and other works published in Australia and overseas. He also enjoys photography, and is interested in disability advocacy and social engagement. While he never went far with his professional lawn bowls career, Robert did carry the Olympic torch in 2000. He is married and lives in Brisbane. He has an eleven-year-old daughter who thinks his Olympic torch would make a really great cricket bat.Triggered: A Memoir of Obsessive-Compulsive Disorder
Par Fletcher Wortmann. 2012
***AS FEATURED ON NPR'S TALK OF THE NATION***Imagine the worst thing in the world. Picture it. Construct it, carefully and…
deliberately in your mind. Be careful not to omit anything. Imagine it happening to you, to the people you love. Imagine the worst thing in the world. Now try not to think about it. This is what it is like for Fletcher Wortmann. In his brilliant memoir, the author takes us on an intimate journey across the psychological landscape of OCD, known as the "doubting disorder," as populated by God, girls, and apocalyptic nightmares. Wortmann unflinchingly reveals the elaborate series of psychological rituals he constructs as "preventative measures" to ward off the end times, as well as his learning to cope with intrusive thoughts through Clockwork Orange-like "trigger" therapy.But even more than this, the author emerges as a preternatural talent as he unfolds a kaleidoscope of culture high and low ranging from his obsessions with David Bowie, X-Men, and Pokemon, to an eclectic education shaped by Shakespeare, Kierkegaard, Catholic mysticism, Christian comic books, and the collegiate dating scene at the "People's Republic of Swarthmore." Triggered is a pitch-perfect memoir; a touching, triumphantly funny, compulsively readable, and ultimately uplifting coming-of-age tale for Generation Anxiety.Fletcher Wortmann on OCD and sex:"If a girl accepts an invitation to help count the tiles on your bedroom ceiling, then she will probably be disappointed when she realizes you were speaking literally."…on OCD and religion:"I have found Catholicism and obsessive compulsive disorder to be deeply sympathetic to one another. One is a repressive construct founded in existential terror, barely restrained by complex, arbitrary ritual behaviors; the other is an anxiety disorder."…on OCD humor:"By the sink, I noticed a perfunctory sign warning readers to wash their hands. It was scrawled with graffiti: NO YOU CAN'T GERMS ARE UNPREVENTABLE AND INESCAPABLE."…on the seductiveness of OCD:"Every so often, everything will work, and you will somehow convince yourself that you are safe, and the disorder will claim credit. I had struck a bargain with the OCD. The transaction was complete. In that moment I became subservient to it."But Everyone Feels This Way: How an Autism Diagnosis Saved My Life
Par Paige Layle. 2024
In But Everyone Feels This Way, Autism acceptance activist and multi-million-follower TikTok influencer Paige Layle shares her deeply personal journey…
to diagnosis and living life autistically. It all started out pretty normal: Paige lived in the countryside with her parents and brother Graham. She went to school, hung out with friends, and all the while everything seemed so much harder than it needed to be. A break in routine threw off the whole day. If her teacher couldn't answer 'why?' in class, she dissolved into tears, unable to articulate her own confusion or explain her lack of control. But Paige was normal. She smiled in photos, picked her feet up when her mum needed to vacuum instead of fleeing the room, and did well at school. She was popular and well-liked. And until she had a full mental breakdown, no one believed her when she claimed that she was not okay.Women are frequently diagnosed with autism much later than men, often in their late teens or early twenties. Armed with her new diagnosis, Paige set out to learn how to live her authentic, autistic life, and discovered how autism could be a source of strength. She challenges stigmas, taboos, and stereotypes so that everyone can see themselves authentically. Along the way, her online activism has spread awareness, acceptance, and self-recognition in millions of others.But Everyone Feels This Way: How an Autism Diagnosis Saved My Life
Par Paige Layle. 2024
In But Everyone Feels This Way, Autism acceptance activist and multi-million-follower TikTok influencer Paige Layle shares her deeply personal journey…
to diagnosis and living life autistically. It all started out pretty normal: Paige lived in the countryside with her parents and brother Graham. She went to school, hung out with friends, and all the while everything seemed so much harder than it needed to be. A break in routine threw off the whole day. If her teacher couldn't answer 'why?' in class, she dissolved into tears, unable to articulate her own confusion or explain her lack of control. But Paige was normal. She smiled in photos, picked her feet up when her mum needed to vacuum instead of fleeing the room, and did well at school. She was popular and well-liked. And until she had a full mental breakdown, no one believed her when she claimed that she was not okay.Women are frequently diagnosed with autism much later than men, often in their late teens or early twenties. Armed with her new diagnosis, Paige set out to learn how to live her authentic, autistic life, and discovered how autism could be a source of strength. She challenges stigmas, taboos, and stereotypes so that everyone can see themselves authentically. Along the way, her online activism has spread awareness, acceptance, and self-recognition in millions of others.Back in the Fight: The Explosive Memoir of a Special Operator Who Never Gave Up
Par Joseph Kapacziewski, Charles W. Sasser. 2013
The inspiring and thrilling combat memoir of the only Army Ranger serving in direct combat operations with a prosthetic limb.On…
October 3, 2005, Kapacziewski and his soldiers were coming to the end of their tour in Northern Iraq when their convoy was attacked by enemy fighters. A grenade fell through the gunner's hatch and exploded, shattering Kapacziewski's right leg below the knee, damaging his right hip, and severing a nerve and artery in his right arm.He endured more than forty surgeries, but his right leg still wasn't healing as he had hoped, so in March 2007, Kapacziewski chose to have it amputated with one goal in mind: to return to the line and serve alongside his fellow Rangers. One year after his surgery, Kapacziewski accomplished his goal: he was put back on the line, as a squad leader of his Army Ranger Regiment.On April 19, 2010, during his ninth combat deployment (and fifth after losing his leg), Kapacziewski's patrol ran into an ambush outside a village in eastern Afghanistan. After a fellow Ranger fell to withering enemy fire, shot through the belly, Sergeant Kap and another soldier dragged him seventy-five yards to safety and administered first aid that saved his life while heavy machineguns tried to kill them. His actions earned him an Army Commendation Medal with "V" for Valor. He had previously been awarded a Bronze Star for Valor—and a total of three Purple Hearts for combat wounds.Back in the Fight is an inspiring and thrilling tale readers will never forget.Too Late to Die Young: Nearly True Tales from a Life
Par Harriet McBryde Johnson. 2005
With a voice as disarmingly bold, funny, and unsentimental as its author, a thoroughly unconventional memoir that shatters the myth…
of the tragic disabled lifeHarriet McBryde Johnson isn't sure, but she thinks one of her earliest memories was learning that she will die. The message came from a maudlin TV commercial for the Muscular Dystrophy Association that featured a boy who looked a lot like her. Then as now, Johnson tended to draw her own conclusions. In secret, she carried the knowledge of her mortality with her and tried to sort out what it meant. By the time she realized she wasn't a dying child, she was living a grown-up life, intensely engaged with people, politics, work, struggle, and community.Due to a congenital neuromuscular disease, Johnson has never been able to walk, dress, or bathe without assistance. With help, however, she manages to take on the world. From the streets of Havana, where she covers an international disability rights conference, to the floor of the Democratic National Convention in Chicago, to an auditorium at Princeton, where she defends her right to live against philosopher Peter Singer, she lives a life on her own terms. And along the way, she defies and debunks every popular assumption about disability. This unconventional memoir opens with a lyrical meditation on death and ends with a surprising sermon on pleasure. In between, we get the tales Johnson most enjoys telling from her own life. This is not a book "about disability" but it will surprise anyone who has ever imagined that life with a severe disability is inherently worse than another kind of life.Franklin and Eleanor: An Extraordinary Marriage
Par Hazel Rowley. 2010
Franklin Delano and Eleanor Roosevelt's marriage is one of the most celebrated and scrutinized partnerships in presidential history. It raised…
eyebrows in their lifetimes and has only become more controversial since their deaths. From FDR's lifelong romance with Lucy Mercer to Eleanor's purported lesbianism—and many scandals in between—the American public has never tired of speculating about the ties that bound these two headstrong individuals. Some claim that Eleanor sacrificed her personal happiness to accommodate FDR's needs; others claim that the marriage was nothing more than a gracious façade for political convenience. No one has told the full story until now. In this groundbreaking new account of the marriage, Hazel Rowley describes the remarkable courage and lack of convention—private and public—that kept FDR and Eleanor together. She reveals a partnership that was both supportive and daring. Franklin, especially, knew what he owed to Eleanor, who was not so much behind the scenes as heavily engaged in them. Their relationship was the product of FDR and Eleanor's conscious efforts—a partnership that they created according to their own ambitions and needs.In this dramatic and vivid narrative, set against the great upheavals of the Depression and World War II, Rowley paints a portrait of a tender lifelong companionship, born of mutual admiration and compassion. Most of all, she depicts an extraordinary evolution—from conventional Victorian marriage to the bold and radical partnership that has made Franklin and Eleanor Roosevelt go down in history as one of the most inspiring and fascinating couples of all time.Spirit of the Century: Our Own Story
Par The Blind Boys of Alabama. 2024
An insider history of the Blind Boys of Alabama, the longest running group in American music, and the untold story…
of their world, written with band members and key musical colleagues. The Blind Boys of Alabama are the quintessential Gospel vocal group, and the longest-running musical institution in America. Their story intersects with pivotal moments and issues in American history and is an ideal prism through which to trace music, culture, history, and race in America. Spirit of the Century invites readers to follow along the Blind Boys&’ eight-decade journey together from a segregated trade school, through the rough and tumble indie record game and grinding tour schedule of the golden age of gospel, to starring in an iconic Broadway musical, performing at the White House for three presidents twice, collaborating with Tom Petty, Lou Reed, and Ben Harper, among others, singing the theme song for &“The Wire,&” and winning five Grammys. More than just a story of the Blind Boys' illustrious career, Spirit of the Century also sheds new light on the larger world of African American gospel music, its origins, and the colorful characters at its center. Though there have been several iterations of the group over the decades, Spirit of the Century rounds up all surviving members of the group as contributors to the telling of their own story, and a result, the book offers a unique and intimate perspective on the group's enduring success. Current drummer and road manager Rickie McKinney has been with the group throughout its renaissance, while guitarist Joey Williams, the group&’s sighted member, has been the eyes of the Blind Boys since 1992. Octogenarian Jimmy Lee Carter has a fascinating history, as a fellow student of the original but deceased Blind Boys Clarence Fountain, George Scott, Olice Thomas, Johnny Fields, J.T. Hutton, and Velma Traylor at the Talladega school. Carter is one of a few performers who have been in both the Blind Boys of Alabama and Mississippi. He fronts the Alabama group today as a classic quartet leader and fiery preacher. Along with extensive interviews of Fountain, these legendary musicians provide this book with the voice, firsthand perspective, and authenticity that bring their story the same inspirational power that you hear in their songs. Thought-provoking, heartfelt, and deeply inspiring, Spirit of the Century is a fascinating and one-of-a-kind read that you won't be able to put down.Go the Way Your Blood Beats
Par Emmett De Monterey. 2023
AN EXTRAORDINARILY MOVING AND ORIGINAL MEMOIR OF GROWING UP GAY AND DISABLED IN 1980s LONDONSHORTLISTED FOR THE SLIGHTLY FOXED BEST…
BIOGRAPHY PRIZE 2023 When Emmett de Monterey is eighteen months old, a doctor diagnoses him with cerebral palsy. Words too heavy for his twenty-five-year-old artist parents and their happy, smiling baby.Growing up in south-east London in the 1980s, Emmett is spat at on the street and prayed over at church. At his mainstream school, teachers refuse to schedule his classes on the ground floor, and he loses a stone from the effort of getting up the stairs. At his sixth form college for disabled students, he's told he will be expelled if the rumours are true, if he's gay.And then Emmett is chosen for a first-of-its-kind surgery in America which he hopes will 'cure' him, enable him to walk unaided. He hopes for a miracle: to walk, to dance, to be able to leave the house when it rains. To have a body that's everyday beautiful, to hold hands in the street. To not be gay, which feels like another word for loneliness. But the 'miracle' doesn't occur, and Emmett must reckon with a world which views disabled people as invisible, unworthy of desire. He must fight to be seen.'Vivid, engaging... this insightful memoir sheds light on the author's life as a disabled gay man who is often rendered invisible' Andrew McMillan, Guardian Book of the Day'A frank and intimate memoir written with an incredible clear-eyed intensity' Claire Fuller