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Je ne suis pas seule dans ma tête: survivre grâce aux identités multiples
Par Monique Polloni. 2023
Anne est une femme de 56 ans, douce, au regard allumé, qui vit quelque part sur l'île de Vancouver. Quand…
vient le temps de parler d'elle-même, étonnamment, elle utilise le mot .système.. Car, voyez-vous, Anne n'est pas seule dans sa tête: plusieurs identités s'y côtoient et l'aident, encore aujourd'hui, à surmonter d'importants traumatismes subis pendant l'enfance. Dans cet ouvrage, vous ferez non seulement sa connaissance, mais aussi celle de Joy, de Five, de Kylie, de Kelsie et de Stephie, les principales identités qui l'habitent. Solidement appuyée par des experts, l'autrice explique comment le trouble dissociatif de l'identité (TDI) affecte le couple d'Anne, ses relations, son travail, sa vie tout entièreRemember to feed the kittens
Par Marc Mauer. 1999
In this sixteenth book in the Kernel series, National Federation of the Blind members continue to provide descriptions of living…
with blindness. NFB president Marc Maurer, who has taken over the series since the 1998 death of Kenneth Jernigan, tells of dealing with stereotypes during his first Christmas without his mentorStanding on one foot
1994
Nine essays by blind adults relating experiences regarding their blindness. Kenneth Jernigan writes about the pitfalls of social conditioning and…
of accepting the public's mistaken ideas of a blind person's limitations. Marc Maurer describes becoming a father for the first time, and Gwen Nelson offers her experience as a jurorOh! Say can you see
Par American Action Fund for Blind Children and Adults. 1992
An agency that specializes in services for blind children, elderly blind persons, and deaf-blind individuals provides this volume describing the…
types of assistance and products available through agency offices and government programs. The book introduces readers to a person who is both deaf and blind and to a family with a teenager who was born blind and lost his hearing"Details of everyday life as blind persons live it." Members of the National Federation of the Blind, including Kenneth Jernigan…
and Mark Maurer, contribute essays. Jernigan explains his methods of shaving and brushing his teeth. Barbara Walker discusses her daughter's attitude about her mother's blindness. Patricia Maurer describes learning to read and write as a teenager in a rural communityTapping the charcoal
1995
Eight personal accounts by Kenneth Jernigan and other members of the National Federation of the Blind that demonstrate "Blindness is…
not as strange as you think it is, and it need not be as terrifying." In this volume of the Kernel Book series, authors discuss alternative ways of doing routine tasks and achieving dreams, the need for normal discipline for blind children, and the process of gaining the respect of others. 1995The Journey
1993
Collection of essays designed to show that if given appropriate training and equal opportunity, people who are blind make meaningful…
contributions to society. Includes entries about Kenneth Jernigan, spokesperson for the National Federation of the Blind; Kathy Kannenberg, math teacher; Peggy Pinder, lawyer; and Theodore Paul Lubitz, violinist, singer, and piano tuner. 1993Making hay
1993
In the title essay in this Kernel Book collection, National Federation of the Blind spokesperson Kenneth Jernigan tells of wanting…
to make hay during the summer as a young man. When he was turned down, Jernigan made and sold tables at a much higher rate of pay, proving there are many ways to "make hay." Other essays show that when blind people are given the right opportunities, blindness is reduced to the level of a physical nuisanceDeciding to add a baby to your family is full of unknowns. How long will it take to get pregnant?…
How will age and other factors play into your chances of conceiving? If you need some help, what are your options? Many of these questions have different answers for every person and every pregnancy. With Mayo Clinic Guide to Fertility and Conception, you can take on the adventure of trying for a baby with clear, empathetic guidance. Based on their extensive expertise in helping people build their families, Mayo Clinic physicians break down what contributes to healthy eggs and sperm, steps you can take to get ready for pregnancy, how babies are made, and tips for ovulation tracking, timing sex, and improving your chances. This comprehensive guide also demystifies miscarriage and ectopic pregnancies, as well as many common fertility problems. In addition, the authors offer the latest on reproductive assistance, third-party reproduction, fertility preservation, and the many options now available to help all families, including LGBTQ, transgender, and single parents-to-be, achieve the dream of having a baby. With sensitivity and an inclusive approach, this user-friendly book provides answers and explanations on nearly every aspect of achieving a successful pregnancy. It's an essential guide for anyone who wants to have a babyWe've Got This: Essays by Disabled Parents
Par Eliza Hull. 2023
The first major anthology by parents with disabilities. How does a father who is blind take his child to the…
park? How is a mother with dwarfism treated when she walks her child down the street? How do Deaf parents know when their baby cries in the night? When writer and musician Eliza Hull was pregnant with her first child, like most parents-to-be she was a mix of excited and nervous. But as a person with a disability, there were added complexities. She wondered: Will the pregnancy be too hard? Will people judge me? Will I cope with the demands of parenting? More than 15 percent of people worldwide live with a disability, and many of them are also parents. And yet their stories are rarely shared, their experiences almost never reflected in parenting literature. In We’ve Got This, parents around the world who identify as Deaf, disabled, or chronically ill discuss the highs and lows of their parenting journeys and reveal that the greatest obstacles lie in other people’s attitudes. The result is a moving, revelatory, and empowering anthology that tackles ableism head-on. As Rebekah Taussig writes, ‘Parenthood can tangle with grief and loss. Disability can include joy and abundance. And goddammit — disabled parents exist.’Eddie Olczyk: Beating the Odds in Hockey and in Life
Par Eddie Olczyk, Perry Lefko. 2019
Eddie Olczyk had built a life and career most people could only dream of. Growing up in the suburbs of…
Chicago, he fell in love with the game of hockey during an era when most kids preferred balls to pucks. Against all odds, he played on the 1984 U.S. Olympic hockey team as a 17-year-old, and four months later he was drafted in the first round by his hometown Chicago Blackhawks. During an illustrious 16-year career, he played for and alongside some of the greatest franchises and players in history, winning a Stanley Cup with the unforgettable 1994 New York Rangers. Years later, he coached former teammate Mario Lemieux and Sidney Crosby on the Pittsburgh Penguins before transitioning into the broadcast booth, where he has become one of the most recognizable voices of the sport. He then combined his skills as an analyst with his second passion— horse racing—and became an integral part of NBC’s coverage of thoroughbreds. Away from the spotlight, Olczyk and his wife of three decades raised four adoring children. He was respected and admired by fans, friends, and peers. Life was sweet. Then, at 7:07 pm on August 4, 2017, his entire world turned upside down. In Eddie Olczyk: Beating the Odds in Hockey and in Life, one of the biggest names in American hockey has written an inspiring and entertaining memoir of his life both on and off the ice. From shooting hundreds of tennis balls at a goal in his childhood living room to the ups and downs of his improbable hockey career to rollicking stories from the booth and the backstretch, Olczyk guides readers on his journey toward his ultimate test: a battle against Stage 3 colon cancer. For years, Olczyk’s goal was to be the best husband, father, broadcaster, and handicapper he could be. Today he has a new one: to bring as much awareness and support to those fighting cancer as he possibly can. In this emotional but often hilarious autobiography, you’ll learn why the people who know Eddie Olczyk best might describe him as “tremendously tremendous.”When My Ghost Sings: A Memoir of Stroke, Recovery, and Transformation
Par Tara Sidhoo Fraser. 2023
A lucid exploration of amnesia, selfhood, and who is left behind when the past is obliterated Tara Sidhoo Fraser is…
thirty-two years old when a rare mutation in her brain causes a stroke. Awakening after surgery with no memory of her previous life, she attempts to piece it all back together through a haze of amnesia. Yet, as memories do begin to surface, they are seen through someone else's eyes - the person whose body she stole, whom she calls Ghost. Fighting to stabilize her existence, Tara struggles with the gulf between who she was and who she is now, while constantly battling and paying penance to Ghost. She meets Jude, who is also contending with their identity, the gap between who they are and who they present to the world. As Jude's transition progresses and they begin testosterone injections, Tara's conflict with Ghost heightens. Ghost's voice becomes stronger, and memories buried in the body they now share of hospital visits, old desires, and her ex threaten Tara's new relationship. She burrows deeper into the mystery of who she once was, recognizing the need to fuse herself and Ghost into one. When My Ghost Sings is a lyrical memoir of healing, a farewell letter, and a reclamation of selfhood.Crip Up the Kitchen: Tools, Tips and Recipes for the Disabled Cook
Par Jules Sherred. 2023
"I've never felt so understood and supported as I did reading Crip Up the Kitchen. Sherred is the kitchen whisperer…
for chronic pain folks like me who have avoided that room in the house for most of my life." —J. Albert Mann, author of The Degenerates and FixA comprehensive guide and recipe collection that brings the economy and satisfaction of home cooking to disabled and neurodivergent cooks.Cripping / Crip Up: A term used by disabled disability rights advocates and academia to signal taking back power, to lessen stigma, and to disrupt ableism as to ensure disabled voices are included in all aspects of life.When Jules Sherred discovered the Instant Pot multicooker, he was thrilled. And incensed. How had no one told him what a gamechanger this could be, for any home cook but in particular for those with disabilities and chronic illness? And so the experimenting—and the evangelizing—began. The kitchen is the most ableist room in the house. With 50 recipes that make use of three key tools—the electric pressure cooker, air fryer, and bread machine—Jules has set out to make the kitchen accessible and enjoyable. The book includes pantry prep, meal planning, shopping guides, kitchen organization plans, and tips for cooking safely when disabled, all taking into account varying physical abilities and energy levels.Organized from least to greatest effort (or from 1 to “all your spoons,” for spoonies), beginning with spice blends and bases, Jules presents thorough, tested, inclusive recipes for making favourites like butter chicken, Jules’s Effin’ Good Chili, Thai winter squash soup, roast dinners, matzo balls, pho, samosas, borshch, shortbread, lemon pound cake, and many more.Jules also provides a step-by-step guide to safe canning and a template for prepping your freezer and pantry for post-surgery. With rich accompanying photography and food histories, complete nutritional information and methods developed specifically for the disabled and neurodivergent cook, Crip Up the Kitchen is at once inviting, comprehensive, and accessible. If you’ve craved the economy and satisfaction of cooking at home but been turned off by the ableist approach of most cookbooks—this one’s for you!Terry & Me: The Inside Story of Terry Fox's Marathon of Hope
Par Bill Vigars. 2023
There has never been a Canadian quite like Terry Fox and there’s never been a story quite like The Marathon…
of Hope.A twenty-two-year-old cancer survivor and amputee, Terry set out from St. John’s, Newfoundland in April 1980, aiming to run across Canada to raise money for cancer research. His first months on the road in Atlantic Canada and Quebec were not only physically taxing—he ran the equivalent of a marathon a day—but frustrating as Canadians were slow to recognize and support his endeavor.That all changed when he met a young man named Bill Vigars, who on behalf of the Canadian Cancer Society led a campaign to ensure that every person in Canada knew the story of this outstanding young man. Vigars was by Fox’s side through all the highs and lows until the tragic end of his journey in Thunder Bay. A recurrence of his cancer cut short Terry’s dream and, soon, his life. Now, for the first time, Vigars tells the inside story of the Marathon of Hope—the logistical nightmares, boardroom battles, and moments of pure magic—while giving us a fresh, insightful portrait of one of the greatest Canadians who ever lived.Beryl: The Making of a Disability Activist
Par Dustin Galer. 2023
The story of a mid-century working-class housewife whose extraordinary physical transformation empowered her to become a dynamic social activist who…
fueled a movement to create a more inclusive future for people with disabilities.The power of teamwork: How we can all work better together
Par Brian Goldman. 2022
The national bestseller from the host of CBC Radio's White Coat, Black Art — now in paperback! In the high-pressure…
and complex setting of health care, a new approach to teamwork is leading to healthier patients, happier staff and more efficient operations. Doctors are learning art appreciation to improve diagnostic skills. Hospitals are adopting airplane-style "black boxes" in operating rooms to reduce errors and create better teams. And lessons from the medical world are helping to build better teamwork outside hospitals. Through board games like Friday Night at the ER, Fortune 500 companies and other organizations are learning that running a busy emergency room provides valuable insight that can help anyone who is part of a team, or leads one, to be more effective. Although a group is not a team, any group can become a team. Drawing on groundbreaking research, including how to leverage the science of team building, Brian Goldman offers teachable strategies and examples from around the world that can make us all work better togetherBeloved Love on the Spectrum star and disability rights advocate Jodi Rodgers shares stories from her expansive career working within…
the autistic community and calls for a more inclusive and accepting society. In How to Find a Four-Leaf Clover , Jodi Rodgers gives us inspiring, heartwarming stories from her years of experience as a teacher and counselor supporting autistic people. While acknowledging our differences, these stories invite us to expand our empathy and compassion for the neurodivergent people in our lives. Throughout, Rodgers explores the powerful impact of embracing neurodiversity and forming meaningful connections with those around us. Each chapter highlights a different story and an aspect of human behavior, including: How we perceive the world, and our own unique experience of thinking, sensing, and feeling How we communicate our perspective to others, understand one another, and express ourselves How we can better connect with one another With dozens of moving stories, How to Find a Four-Leaf Clover will give readers a deeper understanding of and appreciation for the neurodiverse community around them. Above all, it will inspire a profound sense of belonging, revealing that we're much more similar than we thinkHealth for All: A Doctor's Prescription for a Healthier Canada
Par Jane Philpott. 2024
From one of Canada's most respected and high-profile health professionals (and former federal Minister of Health), a timely, practical, ambitious,…
and deeply personal call for action on health that sets out the roadmap to our future well-being.Jane Philpott has spent her life learning what makes people sick and what keeps people well. She has witnessed miracles in modern medicine. She has also watched children die of starvation in a world that has plenty of food. With Health for All, she sounds a clarion call for a radical disruption in a health care system that is broken—but not beyond repair. The vision is rooted in a deep-seated commitment to health equity.Decades ago, a few visionary Canadian leaders put laws in place to ensure health care insurance for all. But the structures to deliver that care were never fully developed as envisioned. As a result, our health systems are not comprehensive or well-coordinated. In the wake of a pandemic, we risk it all falling apart. More than six million people have no family doctor, nor any other access to primary care. Emergency rooms are routinely closed. Exhausted health workers wonder if it will ever get better. Some say we should hand health care over to the private sector. But to abandon our commitment to publicly funded health care now would only lead to more expensive and less equitable care. Philpott outlines a different solution—an ambitious, once-in-a-generation reset of health systems with universal access to primary care teams.What sets this book apart is that it’s more than a prescription for better medical care. Philpott looks at the big picture of health for all. This includes an intimate look at the personal roots of well-being: hope, belonging, meaning, and purpose. Then, through real-life stories, she examines the impact of the social determinants of health. Finally, she explains that none of this will happen without the political will to do the hard work of rebuilding a healthy society. The remedy we await is serious leadership to implement what we already know and to put the well-being of Canadians at the top of the agenda.Rough Magic: Living with Borderline Personality Disorder
Par Miranda Newman. 2024
A harrowing but ultimately uplifting memoir about living with borderline personality disorder—the most stigmatized diagnosis in mental health."I didn’t know…
whether to take you to a psychologist or an exorcist."This is how Miranda Newman’s mother described the experience of trying to find an explanation for her daughter’s behaviour. It would be years before Miranda was able to find a diagnosis that explained the complicated way she moved through the world. She would have to advocate for herself in the mental health system while dealing with abuse, being unhoused, survival sex, suicide attempts and hospitalizations.Through it all, Miranda has found strength in her diagnosis. Her recollections are visceral and confessional, but also self-aware, irreverent and funny. She tells readers how she has found strength and joy in what others might see as tragic, while bolstering her personal recollections with deeply researched observations on Canada’s mental healthcare system, and the history of diagnostics and disorder, using research supported by her work at Yale University.Letters with Smokie: Blindness and More-than-Human Relations
Par Rod Michalko, Dan Goodley. 2023
Letters with Smokie captures an epistolic exchange between Dan Goodley and Rod Michalko, or rather, Rod Michalko's late guide dog,…
Smokie. A lively exploration of human-animal relationships and disability as disruption, disturbance, and art, the book offers a refreshing re-evaluation of cultural misunderstandings of disability.