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Finalist for the PEN/Jacqueline Bograd Weld Award for Biography Finalist for the Mark Lynton History Prize&“Meticulously researched, crackling with insights,…
and rich in novelistic detail&” (Steve Silberman), this&“provocative, sensitive, beautifully written biography&” (Sylvia Nasar) tells the true—and troubling—story of Alexander Graham Bell&’s quest to end deafness.&“Researched and written through the Deaf perspective, this marvelously engaging history will have us rethinking the invention of the telephone.&” —Jaipreet Virdi, PhD, author of Hearing Happiness: Deafness Cures in History We think of Alexander Graham Bell as the inventor of the telephone, but that&’s not how he saw his own career. As the son of a deaf woman and, later, husband to another, his goal in life from adolescence was to teach deaf students to speak. Even his tinkering sprang from his teaching work; the telephone had its origins as a speech reading machine.The Invention of Miracles takes a &“stirring&” (The New York Times Book Review), &“provocative&” (The Boston Globe), &“scrupulously researched&” (Pittsburgh Post-Gazette) new look at an American icon, revealing the astonishing true genesis of the telephone and its connection to another, far more disturbing legacy of Bell&’s: his efforts to suppress American Sign Language. Weaving together a dazzling tale of innovation with a moving love story, the book offers a heartbreaking account of how a champion can become an adversary and an enthralling depiction of the deaf community&’s fight to reclaim a once-forbidden language.Katie Booth has been researching this story for more than fifteen years, poring over Bell&’s papers, Library of Congress archives, and the records of deaf schools around America. But she&’s also lived with this story for her entire life. Witnessing the damaging impact of Bell&’s legacy on her family would set her on a path that overturned everything she thought she knew about language, power, deafness, and the telephone.Blindness: What it is, What it Does, and How to Live with it
Par Thomas J. Carroll. 1961
A Special Mother: Getting Through the Early Days of a Child's Diagnosis of Learning Disabilities and Related Disorders
Par Anne Ford, John-Richard Thompson. 2010
All mothers experience worries and fears about their children, but none can compare with the early days when a mother…
feels something's not quite right. Anne Ford knows the feeling. She's had it herself, having raised a daughter with severe learning disabilities, and has gone on to share experiences with others during her many years as a volunteer with the National Center for Learning Disabilities.To bring comfort, support, and hard information to mothers-and fathers, too-in the early period surrounding the diagnosis, here is the book that Anne wishes she'd had years ago when she first received the news about her daughter and didn't know where to turn for the practical and emotional help she desperately needed.Filled with essential advice and the voices of other mothers whose children have LD and related disorders such as Asperger's and ADHD, A Special Mother lets parents know they are not alone and that they can help their child to thrive. This invaluable book addresses such matters as:Understanding Learning Disabilities and Related DisordersWhat Should You Do First?Interpreting Evaluation ResultsResolving DisputesSpecial Fathers: They Are Out ThereThe Social Side of LDAdvocacy vs. ObsessionHow Are You Doing?: Taking Care of YourselfDigital Media as Ambient Therapy explores the ways “mental illness” can emerge from our relationships (with ourselves, others, and the…
world), to address the concern around what kind of relationality is conducive for “mental health” and what role digital technologies can play in fostering such relationality.Exploring the rise of ambient—that is to say, ubiquitous, surrounding, and environmental—technologies and their impact on our understanding of “mental health,” sanity, and therapy, this book critically examines the work of influential contemporary social theorists such as Hartmut Rosa and investigates case studies that reveal new modes of digitally mediated intimacy and attention, such as ASMR and QAnon. It also poses the question of what “mental health” and “mental illness” mean for subjects increasingly faced with a maddening sense of interconnectedness.This book offers new perspectives for academics and postgraduates interested in critical discussions of alienation, digital technology, and contemporary social theory.This resource will lead the reader through the practicalities of assessment, diagnosis, and therapeutic intervention for children of all ages…
with features of childhood apraxia of speech. It provides the theory and underlying principles upon which to work with children who have this fascinating but challenging disorder in collaboration with families and schools.Chapters are clearly laid out, with hands on activities for intervention and helpful summaries. There is a focus on alternative and augmentative means of communication and multidisciplinary working, as well as a wealth of case studies and teaching notes for training other professionals. Fresh ways of working are addressed, such as the use of teletherapy and other techniques such as group therapy and the consultative approach are discussed.Key features include: A theoretical overview of current thinking about childhood apraxia of speech A structured assessment format with a chapter specifically focused on how to take a detailed speech sample Clear guidance on how to make a differential diagnosis How to spot early indicators of childhood apraxia of speech Advice sheets for parents and schools Downloadable record forms for case history taking and assessment. This book can be read cover to cover or dipped into for quick and easy therapy ideas and is presented in an easy-to-read format, with chapters broken down into bite-sized chunks. It is an essential handbook for all speech and language therapists and students, whatever their level of experience.Beautiful People: My Thirteen Truths About Disability
Par Melissa Blake. 2024
Well-known disability activist and social media influencer Melissa Blake offers a frank, illuminating memoir and a call to action for…
disabled people and allies. In the summer of 2019, journalist Melissa Blake penned an op-ed for CNN Opinion. A conservative pundit caught wind of it, mentioning Blake&’s work in a YouTube video. What happened next is equal parts a searing view into society, how we collectively view and treat disabled people, and the making of an advocate. After a troll said that Blake should be banned from posting pictures of herself, she took to Twitter and defiantly posted three smiling selfies, all taken during a lovely vacation in the Big Apple:I wanted desperately to clap back at these vile trolls in a way that would make a statement, not only about how our society views disabilities, but also about the toxicity of our strict and unrealistic beauty standards. Of course I knew that posting those selfies wasn't going to erase the nasty names I'd been called and, the chances were, they would never even see my tweet, but that didn't matter. I wasn't doing it for them; I was doing it for me and every single disabled person who has been bullied before, online and in real life. When people mock how I look, they're not just insulting me. They're insulting all disabled people. We're constantly told that we're repulsive and ugly and not good enough to be seen. This was me pushing back against that toxic, ableist narrative.For the first time, I felt like I was doing something empowering, taking back my power and changing the story. Her tweet went viral, attracting worldwide media attention and interviews with the BBC, USA Today, the Chicago Tribune, PEOPLE magazine, Good Morning America and E! News. Now, in her manifesto, Beautiful People, Blake shares her truths about disability, writing about (among other things): the language we use to describe disabled people ableism, microaggressions, and their pernicious effects what it's like to live in a society that not only isn't designed for you, but actively operates to render you invisible her struggles with self‑image and self‑acceptance the absence of disabled people in popular culture why disabled people aren't tragic heroes Blake also tells the stories of some of the heroes of the disability rights movement in America, in doing so rescuing their incredible achievements from near total obscurity. Highlighting other disabled activists and influencers, Blake&’s work is the calling card of a powerful voice—one that has sparked new, different, better conversations about disability.Narrating the Many Autisms: Identity, Agency, Mattering
Par Anna Stenning. 2023
Autism is a profoundly contested idea. The focus of this book is not what autism is or what autistic people…
are, but rather, it grapples with the central question: what does it take for autistic people to participate in a shared world as equals with other people? Drawing from her close reading of a range of texts, by autistic authors, filmmakers, bloggers, and academics, Anna Stenning highlights the creativity and imagination in these accounts and also considers the possibilities that emerge when the unexpected and novel aspects of experience are attended to and afforded their due space. Approaching these narrative accounts in the context of both the Anthropocene and neoliberalism Stenning unpacks and reframes understandings about autism and identity, agency and mattering, across sections exploring autistic intelligibility, autistic sensibility, and community-oriented collaboration and care. By moving away from the non-autistic stories about autism that have, over time, dominated public conception of the autistic experience and relationships, as well as the cognitive and psychoanalytic paradigms that have reduced autism and autistic people to a homogeneous group, the book instead reveals the multiplicity of autistic subjectivities and their subsequent understandings of oppression. It calls on readers to listen to what autistic people have to say about the possibilities of resistance and solidarity against intersecting currents and eddies of power, which endanger all who challenge the neoliberal conception of Life. A stirring and meaningful departure from atomized accounts of neurological difference, Narrating the Many Autisms ponders big questions about its topic and finds clarity and meaning in the sense-making practices of autistic individuals and groups. It will appeal to scholarly readers across the fields of disability studies, cultural studies, critical psychology, sociology, anthropology, and literature. The Open Access version of this book, available at http://www.taylorfrancis.com, has been made available under a Creative Commons [Attribution-Non Commercial-No Derivatives (CC-BY-NC-ND)] 4.0 license.The Intentional IEP: A Team Approach to Better Outcomes for Students and Their Families
Par Stephanie DeLussey. 2024
Learn how to put together IEPs with the power to make a real difference for students The Intentional IEP shows…
special education teachers how to successfully collaborate with all stakeholders—parents or guardians, general ed teachers, therapists, and beyond—to work toward students’ success. Too many of us aren’t trained to write the Individualized Education Programs that help millions of students with thrive in school. This book fills that training gap, explaining the importance of assembling an IEP team and inviting this team to confront and improve its current processes and habits to make IEP writing simpler and more effective. With all the pressures that educators are under, it’s easy to cut corners when it comes time towrite IEPs. Writing them in isolation, leaving them to the night before, making decisions without consulting data and research, letting family collaboration fall to the wayside—most special educators have made these mistakes at some point. The Intentional IEP equips you with the resources you need to feel confident in approaching IEPs the right way, including prioritizing the many competing demands you face so you can find the capacity to show up for your students. This book offers: Clear, step-by-step solutions for all IEP members that can easily be implemented at any time during the school year Collaboration strategies for IEP teammates to rely on one another for expert and professional knowledge Tools and reproducibles to strengthen practices and overcome common hurdles Direct advice from a veteran special education teacher who has seen what a difference collaboration in the IEP can make for studentsThe Intentional IEP is a timely resource for special education teachers, general education teachers, and support staff, as well as teachertraining programs. Parents and guardians with students will also benefit from this clearly written guide to the IEP.No matter what challenges they face, your baby can self-feed, too! One in four children has feeding challenges and difficulty…
eating. If your child is one of them, mealtimes may be a struggle. Whether the reason is neurodiversity (such as Down syndrome), feeding aversion, or a medical condition, feeding therapist Jill Rabin and baby-led weaning pioneer Gill Rapley are here to help with a groundbreaking new approach for parents, caregivers, and health professionals alike: adapted baby-led weaning (ABLW). Find out how to: Respond to your baby’s signals and appetite—and trust their abilities. Improve your baby’s chewing, posture, sensory development, and fine motor skills. Use “bridge devices,” like silicone feeders, to encourage independent eating. Support your baby to eat real, healthy food and enjoy mealtimes with the rest of the family.The Gender Creative Child: Pathways For Nurturing And Supporting Children Who Live Outside Gender Boxes
Par Diane Ehrensaft. 2016
From a leading US authority on a subject more timely than ever—an up-to-date, all-in-one resource on gender-nonconforming children and adolescents…
In her groundbreaking first book, Gender Born, Gender Made, Dr. Diane Ehrensaft coined the term gender creative to describe children whose unique gender expression or sense of identity is not defined by a checkbox on their birth certificate. Now, with The Gender Creative Child, she returns to guide parents and professionals through the rapidly changing cultural, medical, and legal landscape of gender and identity. In this up-to-date, comprehensive resource, Dr. Ehrensaft explains the interconnected effects of biology, nurture, and culture to explore why gender can be fluid, rather than binary. As an advocate for the gender affirmative model and with the expertise she has gained over three decades of pioneering work with children and families, she encourages caregivers to listen to each child, learn their particular needs, and support their quest for a true gender self. The Gender Creative Child unlocks the door to a gender-expansive world, revealing pathways for positive change in our schools, our communities, and the world.How to Be a Sister: A Love Story With A Twist Of Autism
Par Eileen Garvin. 2010
The first book by acclaimed author Eileen Garvin—her deeply felt, impeccably written memoir, How to Be a Sister will speak…
to siblings, parents, friends, and teachers of people with autism—and to anyone who sometimes struggles to connect with someone difficult or different. Eileen Garvin’s older sister, Margaret, was diagnosed with severe autism at age three. Growing up alongside Margaret wasn’t easy: Eileen often found herself in situations that were simultaneously awkward, hilarious, and heartbreaking. For example, losing a blue plastic hairbrush could leave Margaret inconsolable for hours, and a quiet Sunday Mass might provoke an outburst of laughter, swearing, or dancing. How to Be a Sister begins when Eileen, after several years in New Mexico, has just moved back to the Pacific Northwest, where she grew up. Being 1,600 miles away had allowed Eileen to avoid the question that has dogged her since birth: What is she going to do about Margaret? Now, Eileen must grapple with this question once again as she tentatively tries to reconnect with Margaret. How can she have a relationship with someone who can’t drive, send email, or telephone? What role will Eileen play in Margaret’s life as their parents age, and after they die? Will she remain in Margaret’s life, or walk away? A deeply felt, impeccably written memoir, How to Be a Sister will speak to siblings, parents, friends, and teachers of people with autism—and to anyone who sometimes struggles to connect with someone difficult or different.Let's Cook! (Revised): 55 Quick And Easy Recipes For People With Intellectual Disability
Par Anne Kissack, Elizabeth D. Riesz. 2021
Prepare your own healthy meals with success! In Let’s Cook! you’ll learn how to cook simple and nutritious meals—with recipes…
using all the MyPlate food groups. Gain confidence in the kitchen and build self-worth! Designed by and for adults with intellectual disability, Let’s Cook! promotes and reinforces life skills for independent living. Let’s Cook! can help you: Create healthy meals. Control carbs, calories, and salt. Follow food and kitchen safety. Eat well, today and every day! Inside Let’s Cook! you’ll find: More than 50 healthy “I can cook” recipes in large print are written at an early elementary reading level. An easy-to-follow recipe style sets forth What I Need, What I Use, What I Do. Color photos showcase each recipe. Step-by-step preparations take the guesswork out of cooking. Complete nutrient information is included for each recipe.Loving Rachel: A Family's Journey from Grief
Par Jane Bernstein. 2007
In 1983, Jane Bernstein had everything she ever wanted: a healthy four-year-old daughter, Charlotte; a happy marriage; a highly praised…
first novel; and a brand new baby, Rachel. But by the time Rachel was six weeks old, a neuro-ophthalmologist told Jane and her husband that their baby was blind. Although there was some hope that Rachel might gain partial vision as she grew, her condition was one that often resulted in seizure disorders and intellectual impairment. So began a series of medical and emotional setbacks that were to plague Rachel and her parents and strain their marriage to the breaking point. Spanning the first four years of Rachel’s life, Loving Rachel is a heartbreaking chronicle of a marriage and a compelling story of parental love told with searing honesty and surprising humor.The honest, relatable, actionable roadmap to the practicalities of parenting a disabled child, featuring personal stories, expert interviews, and the…
foundational information parents need to know about topics including diagnosis, school, doctors, insurance, financial planning, disability rights, and what life looks like as a parent caregiver. For parents of disabled children, navigating the systems, services, and supports is a daunting, and often overwhelming, task. No one explains to parents how to figure out the complex medical, educational, and social service systems essential to their child&’s success. Over and over, parents are being asked to reinvent the exact same wheels. According to the CDC, &“Every 4 ½ minutes a baby is born with a birth defect in the United States.&” That&’s 1 in 33. There&’s no handbook for how to do this. Until now. Presented with empathy and humor, Everything No One Tells You About Parenting a Disabled Child: Your Guide to the Essential Systems, Services, and Supports gives parents the tools to conquer the stuff, so that they can spend less time filling out forms, and more time loving their children exactly as they are. With over a decade of experience navigating these systems for her own child, author Kelley Coleman presents key information, templates, and wisdom alongside practical advice from over 40 experts, covering topics such as diagnosis, working with your medical team, insurance, financial planning, disability rights and advocacy, and individualized education plans. Everything No One Tells You About Parenting a Disabled Child gives parents the tools they need to stop wasting unnecessary time, money, and stress. If you need to know how to actually do the things, this book is for you.Building the Inclusive City: Governance, Access, and the Urban Transformation of Dubai
Par Victor Santiago Pineda. 2020
This Open Access book is an anthropological urban study of the Emirate of Dubai, its institutions, and their evolution. It…
provides a contemporary history of disability in city planning from a non-Western perspective and explores the cultural context for its positioning. Three insights inform the author’s approach. First, disability research, much like other urban or social issues, must be situated in a particular place. Second, access and inclusion forms a key part of both local and global planning issues. Third, a 21st century planning education should take access and inclusion into consideration by applying a disability lens to the empirical, methodological, and theoretical advances of the field. By bridging theory and practice, this book provides new insights on inclusive city planning and comparative urban theory. This book should be read as part of a larger struggle to define and assert access; it’s a story of how equity and justice are central themes in building the cities of the future and of today.An Oral History of the Special Olympics in China Volume 2: The Movement (Economy and Social Inclusion)
Par William P. Alford, Mei Liao, Fengming Cui. 2020
This open access book contains the oral histories that were inspired by the work of the Special Olympics in conjunction…
with the 50th anniversary of its founding. The foreword and prefatory materials provide an overview of the Special Olympics and its growth in the People’s Republic of China. The sections that follow record interview transcripts of individuals with intellectual disabilities living in Shanghai. In addition to chronicling the involvement of these individuals and their families in the Special Olympics movement, the interview transcripts also capture their daily lives and how they have navigated school and work.An Oral History of the Special Olympics in China Volume 1: Overview (Economy and Social Inclusion)
Par William P. Alford, Mei Liao, Fengming Cui. 2020
This open access book is unique in presenting the first oral history of individuals with an intellectual disability and their…
families in China. In this summary volume and the two accompanying volumes that follow, individuals with an intellectual disability tell their life stories, while their family members, teachers, classmates, and co-workers describe their professional, academic, and family relationships. Besides interview transcripts, each volume provides observations and records in real time the daily experiences of people with an intellectual disability. Drawing on the methodologies of sociology and oral history, the summary volume provides an unprecedented account of how people with intellectual disabilities in China understand themselves while also examining pertinent issues of public policy and civil society that have ramifications beyond the field of disability itself.The Disability Experience: Working Toward Belonging (Orca Issues #5)
Par Hannalora Leavitt. 2021
People with disabilities (PWDs) have the same aspirations for their lives as you do for yours. The difference is that…
PWDs don’t have the same access to education, employment, housing, transportation and healthcare in order to achieve their goals. In The Disability Experience you’ll meet people with different kinds of disabilities, and you'll begin to understand the ways PWDs have been ignored, reviled and marginalized throughout history. The book also celebrates the triumphs and achievements of PWDs and shares the powerful stories of those who have fought for change.An Oral History of the Special Olympics in China Volume 3: Finding and Keeping a Job (Economy and Social Inclusion)
Par William P. Alford, Mei Liao, Fengming Cui. 2020
This open access book brings together oral histories that record the experiences of individuals with intellectual disabilities in Shanghai as…
they participate in their careers. Employees with intellectual disabilities describe their experiences seeking, attaining, and maintaining employment. Their managers, colleagues, and family members also provide keen insight into the challenges and opportunities these individuals have encountered in the process of securing employment. An appendix provides a compilation of employment policies related to people with intellectual disabilities, particularly with respect to Shanghai.Routledge Handbook of Disability Studies
Par Nick Watson, Simo Vehmas. 2020
This fully revised and expanded second edition of the Routledge Handbook of Disability Studies takes a multidisciplinary approach to disability…
and provides an authoritative and up-to-date overview of the main issues in the field around the world today. Adopting an international perspective and arranged thematically, it surveys the state of the discipline, examining emerging and cutting-edge areas as well as core areas of contention.Divided in five parts, this comprehensive handbook covers: Different models and approaches to disability. How key impairment groups have engaged with disability studies and the writings within the discipline. Policy and legislation responses to disability studies and to disability activism. Disability studies and its interaction with other disciplines, such as history, philosophy, sport, and science and technology studies. Disability studies and different life experiences, examining how disability and disability studies intersects with ethnicity, sexuality, gender, childhood and ageing. Containing 15 revised chapters and 12 new chapters from an international selection of leading scholars, this authoritative handbook is an invaluable reference for all academics, researchers, and more advanced students in disability studies and associated disciplines such as sociology, health studies and social work.Chapter 6 of this book is freely available as a downloadable Open Access PDF at http://www.taylorfrancis.com under a Creative Commons Attribution-Non Commercial-No Derivatives (CC-BY-NC-ND) 4.0 license.