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Beryl: The Making of a Disability Activist
Par Dustin Galer. 2023
The story of a mid-century working-class housewife whose extraordinary physical transformation empowered her to become a dynamic social activist who…
fueled a movement to create a more inclusive future for people with disabilities.Beryl: The Making of a Disability Activist
Par Dustin Galer. 2023
The story of a mid-century working-class housewife whose extraordinary physical transformation empowered her to become a dynamic social activist who…
fueled a movement to create a more inclusive future for people with disabilities.Creativity Explored celebrates its 40th anniversary with a collection of powerful artwork and perspectives from its talented studio artists.This vibrant…
book uplifts the voices of the artists of Creativity Explored, a nonprofit that gives people with developmental disabilities the opportunity to express themselves through art and share their work with audiences from their local community and in the contemporary art world.This curated collection features more than one hundred original paintings, drawings, illustrations, and sculptures—as well as quotes and stories from the artists—inviting readers to examine and challenge their perceptions about disability. Some artworks are humorous and blunt, while others are affecting and abstract, speaking to the artistic community's diversity and creativity. This book offers an engaging introduction to person-centered thinking for art lovers or anyone interested in learning about disability justice in a visual way.DEMYSTIFYING DISABILITY: This significant new anthology showcases an array of developmentally disabled artists and organizes their works into thematic chapters, such as "Self Medication," "On the Spectrum," "Yes I Do Think About Sex," and "Our Fears." These chapters provide interesting stylistic juxtapositions and personal reflections that highlight both individual and shared experiences as diverse disabled artists. BEAUTIFUL AND CONTENT RICH: This gorgeous hardcover art book features more than one hundred original artworks in full color, from lively portraits and detailed drawings to abstract paintings and captivating illustrations. Quotes, interviews, personal stories, and artist statements also give readers deeper insight into the artists' creative practices, processes, and rituals. This book is a rich visual trove and source of inspiration for any contemporary art lover. SUPPORT A GREAT CAUSE: Creativity Explored was founded in 1983 with the belief that art is essential to life. This book celebrates the organization's mission and its talented artists after forty years of creating impactful arts and career programs with developmentally disabled artists. This collection is a meaningful way to learn more about Creativity Explored and the diverse community it continues to support today.Perfect for:Art lovers and activistsPeople who admire the mission and work of Creativity ExploredThe disabled community, allies, and educatorsGift seekers for family and friends interested in learning more about disability justiceFans of self-taught artists, folk arts, and "outsider art"Contemporary art anthology and art book collectors#OwnVoices readers and anyone interested in diversifying their contemporary art knowledgeStrong at the Broken Places: Voices of Illness, a Chorus of Hope
Par Richard Cohen. 2008
The bestselling author of Blindsided, Richard M. Cohen spent three years chronicling the lives of five diverse "citizens of sickness":…
Denise, who suffers from ALS; Buzz, whose Christian faith helps him deal with his non-Hodgkin's lymphoma; Sarah, a determined young woman with Crohn's disease; Ben, a college student with muscular dystrophy; and Larry, whose bipolar disorder is hidden within. Differing in age and gender, race and economic status, all five are determined to live life on their own terms. In Strong at the Broken Places, Cohen shares these inspirational and revealing stories, which offer lessons for us all—–on self-determination, on courage in the face of adversity and public ignorance, on keeping hope alive.We are all strong at the broken places—stronger than we think.To Siri with Love: A Mother, Her Autistic Son, and the Kindness of Machines
Par Judith Newman. 2017
A NEW YORK TIMES NOTABLE BOOK OF 2017From the author of the viral New York Times op-ed column "To Siri…
with Love" comes a collection of touching, hilarious, and illuminating stories about life with a thirteen-year-old boy with autism that hold insights and revelations for us all.When Judith Newman shared the story of how Apple’s electronic personal assistant, Siri, helped Gus, her son who has autism, she received widespread media attention and an outpouring of affection from readers around the world. Basking in the afterglow of media attention, Gus told anyone who would listen, "I’m a movie star."Judith’s story of her son and his bond with Siri was an unusual tribute to technology. While many worry that our electronic gadgets are dumbing us down, she revealed how they can give voice to others, including children with autism like Gus—a boy who has trouble looking people in the eye, hops when he’s happy, and connects with inanimate objects on an empathetic level.To Siri with Love is a collection of funny, poignant, and uplifting stories about living with an extraordinary child who has helped a parent see and experience the world differently. From the charming (Gus weeping with sympathy over the buses that would lie unused while the bus drivers were on strike) to the painful (paying $22,000 for a behaviorist in Manhattan to teach Gus to use a urinal) to the humorous (Gus’s insistence on getting naked during all meals, whether at home or not, because he does not want to get his clothes dirty) to the profound (how an automated "assistant" helped a boy learn how to communicate with the rest of the world), the stories in To Siri with Love open our eyes to the magic and challenges of a life beyond the ordinary.Embracing Hope After Traumatic Brain Injury: Finding Eden (After Brain Injury: Survivor Stories)
Par Michael Arthur. 2022
This important book provides a firsthand account of a university professor who experienced traumatic brain injury. It tells the story of…
Michael Arthur, who had recently accepted a position as vice principal of a new high school. After only two weeks on the job, he was involved in a car accident while driving through an intersection in northern Utah. Through his personal account, he takes the reader into the dark interworkings of his mind as he tries to cope with his new reality. He provides insight into how he learned how to process information and even speak without stumbling on his words while also sharing how his significant relationships suffered as he tried to navigate the restless seas of doubt while trying to circumvent his unyielding symptoms. The book is about finding optimism and gaining insight into the struggles of the brain-injured patient and about trying to understand the perspectives of loved ones who can’t quite grasp the idea of an invisible injury. From the sudden onset of garbled speech to the challenges of processing information, the changing dynamic of the author’s life is highlighted to help family members and healthcare workers better understand.The Little Locksmith: A Memoir (Physically Handicapped In Society Ser.)
Par Katharine Hathaway. 2000
This early 20th century memoir of a woman&’s faith in the face of debilitating disease is a &“remarkably un-self-pitying book…
remains poignant and truthful&” (Publishers Weekly). &“You must not miss it . . . It is the kind of book that cannot come into being without great living and great suffering and a rare spirit behind it.&” —The New York Times In 1895, a specialist straps five-year-old Katharine Hathaway, then suffering from spinal tuberculosis, to a board with halters and pulleys in a failed attempt to prevent her from becoming a &“hunchback&” like the &“little locksmith&” who does odd jobs at her family&’s home. Forced to endure her confinement for ten years, Katharine remains immobile until age fifteen, only to find that none of it has prevented her from developing a deformity of her own. The Little Locksmith charts Katharine&’s struggle to transcend physical limitations and embrace her life, her body, and herself. Her spirit and courage prevail as she expands her world far beyond the boundaries prescribed by her family and society: she attends Radcliffe College, forms deep friendships, begins to write, and in 1921, purchases a house of her own that she fashions into a space for guests, lovers, and artists. Revealing and inspirational, The Little Locksmith stands as a testimony to Katharine&’s aspirations and desires—for independence, love, and the pursuit of her art. &“A powerful revelation of spiritual truth&” —The Boston Globe &“Katharine Butler Hathaway . . . was the kind of heroine whose deeds are rarely chronicled . . . [She took] a life which fate had cast in the mold of a frightful tragedy and redesign[ed] it into a quiet, modest work of art.&” —The New YorkerThe Tennis Partner: A Doctor's Story of Friendship and Loss
Par Abraham Verghese. 1998
An unforgettable, illuminating story of how men live and how they survive, from Abraham Verghese, the acclaimed New York Times…
bestselling author of Cutting for Stone and The Covenant of Water, an Oprah's Book Club Pick.“Heartbreaking. . . . Indelible and haunting, [The Tennis Partner] is an elegy to friendship found, and an ode to a good friend lost.”—The Boston GlobeWhen Abraham Verghese, a physician whose marriage is unraveling, relocates to El Paso, Texas, he hopes to make a fresh start as a staff member at the county hospital. There he meets David Smith, a medical student recovering from drug addiction, and the two men begin a tennis ritual that allows them to shed their inhibitions and find security in the sport they love and with each other. This friendship between doctor and intern grows increasingly rich and complex, more intimate than two men usually allow. Just when it seems nothing can go wrong, the dark beast from David’s past emerges once again—and almost everything Verghese has come to trust and believe in is threatened as David spirals out of control.Double Take: A Memoir
Par Kevin Connolly. 2009
“Kevin Connolly has used an unusual physical circumstance to create a gripping work of art. This deeply affecting memoir will…
place him in the company of Jeanette Walls and Augusten Burroughs.” — Sara Gruen, author of Water for Elephants“Charming … Connolly recounts growing up a scrappy Montana kid—one who happened to be born without legs... [Double Take] makes for an empowering read.” — PeopleAs featured on 20/20, NPR, and in the Washington Post: Kevin Connolly is a young man born without legs who travels the world—by skateboard, with his camera—on his “Rolling Exhibition,” snapping pictures of peoples’ reactions to him… and finds out along the way what it truly means to be human.Don't Worry, He Won't Get Far on Foot
Par John Callahan. 2018
Now a major motion picture directed by Gus Van Sant and starring Joaquin Phoenix, Jonah Hill, and Rooney MaraFeaturing more than…
60 of Callahan's original cartoons“When people laugh like hell and then say, ‘That’s not funny,’ you can be pretty sure they’re talking about John Callahan.”— P.J. O’RourkeIn 1972, at the age of 21, John Callahan was involved in a car crash that severed his spine and made him a quadriplegic. A heavy drinker since the age of 12 (alcohol had played a role in his crash), the accident could have been the beginning of a downward spiral. Instead, it sparked a personal transformation. After extensive physical therapy, he was eventually able to grasp a pen in his right hand and make rudimentary drawings. By 1978, Callahan had sworn off drinking for good, and begun to draw cartoons.Over the next three decades, until his death in 2010, Callahan would become one of the nation’s most beloved—and at times polarizing—cartoonists. His work, which shows off a wacky and sometimes warped sense of humor, pokes fun at social conventions and pushes boundaries. One cartoon features Christ at the cross with a thought bubble reading “T.G.I.F.” In another, three sheriffs on horseback approach an empty wheelchair in the desert. “Don’t worry,” one sheriff says to another, “He won’t get far on foot.”Don’t Worry, He Won’t Get Far on Foot recounts Callahan’s life story, from the harrowing to the hilarious. Featuring more than 60 of Callahan’s cartoons, it’s a compelling look at art, addiction, disability, and fame. A film adaptation scheduled for 2018, starring Joaquin Phoenix as John Callahan, will bring fresh attention to this underappreciated classic.One More Theory About Happiness: A Memoir
Par Paul Guest. 2010
“In these lyrical, searing pages, Guest manages to break our hearts and put them back together again.”—Ann HoodIn the tradition…
of Lucy Grealy’s Autobiography of a Face, One More Theory About Happiness is a bold and original memoir from the acclaimed, Whiting Award-winning poet Paul Guest, author of My Index of Horrifying Knowledge. A remarkable account of the accident that left him a quadriplegic, and his struggle to find independence, love, and a life on his own terms, One More Theory About Happiness has been praised by Charles Bock, author of Beautiful Children, as, “Smart and honest and clear eyed and above all, humane.”Father and Son: A Memoir
Par Jonathan Raban. 2023
A NEW YORKER BEST BOOK OF THE YEAR • A poignant memoir of love, trauma, and recovery after a life-changing stroke,…
twinned to a powerful account of his father's experience in World War II, by a winner of the National Book Critics Circle Award.&“A beautiful, compelling memoir...Raban&’s final work is a gorgeous achievement.&” —Ian McEwan, New York Times best-selling author of Lessons In June 2011, just days before his sixty-ninth birthday, Jonathan Raban was sitting down to dinner with his daughter when he found he couldn&’t move his knife to his plate. Later that night, at the hospital, doctors confirmed what all had suspected: that he had suffered a massive hemorrhagic stroke, paralyzing the right side of his body. Once he became stable, Raban embarked on an extended stay at a rehabilitation center, where he became acquainted with, and struggled to accept, the limitations of his new body—learning again how to walk and climb stairs, attempting to bathe and dress himself, and rethinking how to write and even read.Woven into these pages is an account of a second battle, one that his own father faced in the trenches during World War II. With intimate letters that his parents exchanged at the time, Raban places the budding love of two young people within the tumultuous landscape of the war&’s various fronts, from the munition-strewn beaches of Dunkirk to blood-soaked streets of Anzio. Moving between narratives, his and theirs, Raban artfully explores the human capacity to adapt to trauma, as well as the warmth, strength, and humor that persist despite it. The result is Father and Son, a powerful story of mourning, but also one of resilience.PDA in the Family: Life After the Lightbulb Moment
Par Steph Curtis. 2024
In this honest and open account of life with her PDA daughter, Sasha, Steph Curtis reveals the everyday struggles and…
explores the milestones of raising a child diagnosed with Pathological Demand Avoidance. This book guides you through the Curtis family's 'lightbulb moment' of recognising Sasha's PDA profile following her autism diagnosis at the age of two, their experiences of various education settings and attempts to access support, everyday life at home and relationships with family and friends. Bursting with practical takeaways and advice from creating personal profiles for your child to help them transition through schools and other settings to the reasonable adjustments you can actually ask for to help make life easier for your PDA child.With unique insights from Sasha's father, sister, and Sasha herself, this book offers insider knowledge, understanding and advice from one family to another. It would also be helpful for those in education, healthcare or other settings to gain a better understanding of Pathological Demand Avoidance.PDA in the Family: Life After the Lightbulb Moment
Par Steph Curtis. 2024
In this honest and open account of life with her PDA daughter, Sasha, Steph Curtis reveals the everyday struggles and…
explores the milestones of raising a child diagnosed with Pathological Demand Avoidance. This book guides you through the Curtis family's 'lightbulb moment' of recognising Sasha's PDA profile following her autism diagnosis at the age of two, their experiences of various education settings and attempts to access support, everyday life at home and relationships with family and friends. Bursting with practical takeaways and advice from creating personal profiles for your child to help them transition through schools and other settings to the reasonable adjustments you can actually ask for to help make life easier for your PDA child.With unique insights from Sasha's father, sister, and Sasha herself, this book offers insider knowledge, understanding and advice from one family to another. It would also be helpful for those in education, healthcare or other settings to gain a better understanding of Pathological Demand Avoidance.Inseparable: How Family and Sacrifice Forged a Path to the NFL
Par Shaquem Griffin, Shaquill Griffin, Mark Schlabach. 2019
Much more than a sports memoir, in Inseparable Shaquem and Shaquill Griffin share the previously untold details of the powerful and…
inspiring story behind the modern NFL&’s first one-handed player, and his twin brother&’s unrelenting devotion, sacrifice, and love. It&’s the story of Shaquem&’s understanding of God&’s purpose for his life—to inspire others to stop being afraid and to stop making excuses—and his family&’s unwavering support in spite of seemingly insurmountable obstacles. The Griffins&’ unlikely underdog story has already captured the imagination of millions of football fans and physically challenged people around the world.Tell Me Everything You Don't Remember: The Stroke That Changed My Life
Par Christine Hyung-Oak Lee. 2017
“A brave, encouraging, genuine work of healing discovery that shows us the ordinary, daily effort it takes to make a…
shattered self cohere.” — Floyd Skloot, author of In the Shadow of Memory“The stuff of poetry and of nightmares… [Lee] investigates her broken brain with the help of a journal, beautifully capturing the helplessness, frustration, and comic absurdity (yes, a book about a stroke can be funny!) of navigating life after your world has been torn apart.” — Susannah Cahalan, author of Brain on Fire“Lee excavates her life with the care of an archeologist in this stunning memoir...Her account is lyrical, honest, darkly comic, surprising, and transcendent in the way it redefines the importance of family history, memory, and what of it we choose to hold with us. A beautiful book.” — Christa Parravani, author of Her: A Memoir“A searing memoir buoyed by hope.” — People“This honest and meditative memoir is the story about how Hyung-Oak Lee rebuilt her life, quite literally one step at a time, and how she discovered the person she had always wanted to become.” — Refinery29.com“Honest and insightful” — New York Times Book Review“Emotionally explicit and intensely circumspect... . With careful thought and new understanding, the author explores the enduring mind-body connection with herself at the nexus of it all. A fascinating exploration of personal identity from a writer whose body is, thankfully, ‘no longer at war.’” — Kirkus Reviews“Fearless... [Lee’s] engaging memoir...makes a difficult topic accessible and relatable. Lee expertly explains how the brain works and how even a damaged brain can adapt. Her narrative is both scientific and emotional, revealing the wonders of biology and the power of the human spirit.” — BooklistChase Your Shadow: The Trials of Oscar Pistorius
Par John Carlin. 2014
Oscar Pistorius was eleven months old when he had both legs amputated below the knee, due to congenital fibular disease.…
Despite this severe disability, Pistorious grew up to be an extraordinary athlete, inspirational role model, and global symbol of resilience. In 2012 he became the first amputee runner in history to compete in the Olympics and was hailed as a hero not only in his native South Africa but around the world.Everything changed for Pistorius in the early morning hours of February 14, 2013—Valentine's Day—when he shot and killed his girlfriend, model Reeva Steenkamp, through a closed bathroom door, allegedly because he mistook her for an intruder intent on doing him harm. He was arrested and charged with premeditated murder, and overnight, the public's view of Pistorius turned on its head.Not since the O. J. Simpson case has a courtroom drama riveted global attention on one man's fate. Acclaimed journalist John Carlin's vivid firsthand account of Pistorius's seven-month murder trial, broadcast worldwide from Johannesburg, details the wrenching emotional breakdowns and merciless interrogation of the accused on and off the stand, the fraught relationship between the Pistorius and Steenkamp families, and the highly controversial verdict of culpable homicide, for which Pistorius received a five-year sentence.But Chase Your Shadow is far more than just a sensational crime story, as Carlin shows through meticulous reporting and extensive access to Pistorius and his family and friends. This courtroom confrontation between a white, privileged, twenty-seven-year-old male athlete on trial for murder and the black female judge who alone would decide his fate—held in a democratic country trying to exorcise its history of racial hatred and endemic violence against women—exposes the complex social and political realities of post-Apartheid South Africa.The Hard Parts: A Memoir of Courage and Triumph
Par Oksana Masters. 2023
&“A gut-wrenching, wildly inspiring story about overcoming the most daunting obstacles through steely tenacity, sheer will, and a great big…
dose of motherly love.&” —Jeannette Walls, #1 New York Times bestselling author of The Glass Castle An inspirational and powerful memoir from the United States&’s most decorated winter Paralympic or Olympic athlete, The Hard Parts is Oksana Masters gripping account of overcoming extraordinary Chernobyl disaster–caused physical challenges to create a life that challenges everyone to push through what is holding them back.Oksana Masters was born in Ukraine—in the shadow of Chernobyl—seemingly with the odds stacked against her. She came into the world with one kidney, a partial stomach, six toes on each foot, webbed fingers, no right bicep, and no thumbs. Her left leg was six inches shorter than her right, and she was missing both tibias. Relinquished to the orphanage system by birth parents daunted by the staggering cost of what would be their child&’s medical care, Oksana encountered numerous abuses, some horrifying. Salvation came at age seven when Gay Masters, an unmarried American professor who saw a photo of the little girl and became haunted by her eyes, waged a two-year war against stubborn adoption authorities to rescue Oksana from her circumstances. In America, Oksana endured years of operations that included a double leg amputation. Still, how could she hope to fit in when there were so many things making her different? As it turned out, she would do much more than fit in. Determined to prove herself and fueled by a drive to succeed that still smoldered from childhood, Oksana triumphed in not just one sport but four—winning against the world&’s best in elite rowing, biathlon, cross-country skiing, and road cycling competitions. Now considered one of the world&’s top athletes, she is the recipient of seventeen Paralympic medals, the most of any US athlete of the Winter Games, Paralympic or Olympic. Oksana&’s astonishing story of journeying through a series of dark tunnels is &“as true a tale of grit as I&’ve ever heard, with a message filled with triumph and beauty—that what doesn&’t kill us makes us stronger, if we are loved&” (Angela Duckworth, New York Times bestselling author of Grit).Soundtrack of Silence: Love, Loss, and a Playlist for Life
Par Matt Hay. 2023
An inspiring memoir of a young man who discovered he was going completely deaf just at the moment he’d fallen…
in love for the first time.As a child, Matt Hay didn’t know his hearing wasn’t the way everyone else processed sound—because of the workarounds he did to fit in, even the school nurse didn’t catch his condition at the annual hearing and vision checks. But by the time he was a prospective college student and couldn’t pass the entrance requirements for West Point, Hay’s condition, generated by a tumor, was unavoidable: his hearing was going, and fast.A personal soundtrack was Hay’s determined compensation for his condition. As a typical Midwestern kid growing up in the 1980s whose life events were pegged to pop music, Hay planned to commit his favorite songs to memory. He prepared a mental playlist of the bands he loved and created a way to tap into his most resonant memories. And the track he needed to cement most clearly? The one he and his new girlfriend, Nora—the love of his life—listened to in the car on their first date.Made vivid with references to instantly recognizable songs—from the Eagles to Elton John, Bob Marley to Bing Crosby, U2 to Peter Frampton—Soundtrack of Silence asks readers to run the soundtrack of their own lives through their minds. It’s an involving memoir of loss and disability, and, ultimately, a both unique and universal love story.A Dangerous Country: An American Elegy
Par Ron Kovic. 2024
Ron Kovic, author of Born on the Fourth of July and one of the country's most powerful and passionate antiwar…
voices, completes his Vietnam Trilogy with this poignant, inspiring, and deeply personal elegy to America. WHEN EIGHTEEN-YEAR-OLD RON KOVIC enlisted in the United States Marine Corps in 1964, he couldn’t foresee that he would return from Vietnam paralyzed and in a wheelchair for life. His best-selling 1976 memoir Born on the Fourth of July became an antiwar classic and was adapted into an Oscar-winning film starring Tom Cruise as Kovic. His follow-up, Hurricane Street, chronicled his advocacy for Vietnam veterans’ rights. A Dangerous Country: An American Elegy completes Kovic’s Vietnam Trilogy, delving deep into his long and often agonizing journey home from war and eventual healing, forgiveness, and spiritual redemption. The book opens with Kovic’s never-before-revealed Vietnam diary (July 7, 1967–July 26, 1968). His entries from this period portray a patriotic young soldier with a strong moral and religious conscience. Kovic then recalls his political awakening after his return from Vietnam confined to a wheelchair following his horrific injury. He also chronicles the tremendous guilt he feels over his accidental killing of a fellow Marine while on patrol. This killing psychologically torments him as much as his severe disability. After years of social, political, and sexual turmoil—and on the brink of suicide—Kovic experiences a powerful epiphany that gives him a reason and purpose to live; a renewed faith and strength to carry on. Although his trauma is severe, his third memoir is ultimately the inspirational story of a survivor finding a way to rise above his depression and despair, forgiving his enemies and himself, and growing deeply committed to a new life.