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When my ghost sings: A memoir of stroke, recovery, and transformation
Par Tara Fraser. 2023
A lucid exploration of amnesia, selfhood, and who is left behind when the past is obliterated. Tara Sidhoo Fraser is…
thirty-one years old when a rare mutation in her brain causes a stroke. Awakening after surgery with no memory of her previous life, she attempts to piece it all back together through a haze of amnesia. Yet, as memories do begin to surface, they are seen through someone else's eyes-the person whose body she stole, whom she calls Ghost. Fighting to stabilize her existence, Tara struggles with the gulf between who she was and who she is now, while constantly battling and paying penance to Ghost. She meets Jude, who is also contending with their identity, the gap between who they are and who they present to the world. As Jude's transition progresses and they begin testosterone injections, Tara's conflict with Ghost heightens. Ghost's voice becomes stronger, and memories of hospital visits, old desires, and her ex threaten Tara's new relationship. She burrows deeper into the mystery of who she once was, recognizing the need to fuse herself and Ghost into one. When My Ghost Sings is a lyrical memoir of healing, a farewell letter, and an embracing/reclamation of selfhoodThe view from down here: Life as a young disabled woman
Par Lucy Webster. 2023
Women's lives are shaped by sexism and expectations. Disabled people's lives are shaped by ableism and a complete lack of…
expectations. But what happens when you're subjected to both sets of rules? This powerful, honest, hilarious, and furious memoir from journalist and advocate Lucy Webster looks at life at the intersection; the struggles, the joys, and the unseen realities of being a disabled woman. From navigating the worlds of education and work, dating and friendship; to managing care; contemplating motherhood; and learning to accept your body against a pervasive narrative that it is somehow broken and in need of fixing, The View from Down Here shines a light on what it really means to move through the world as a disabled woman. © 2023 Lucy Webster © 2023 DK AudioLosing music: A memoir
Par John Cotter. 2023
"I was in the car the first time music seemed strange: the instruments less distinct, the vocals less crisp." John…
Cotter was thirty years old when he first began to notice a ringing in his ears. Soon the ringing became a roar inside his head. Next came partial deafness, then dizziness and vertigo that rendered him unable to walk, work, sleep, or even communicate. At a stage of life when he expected to be emerging fully into adulthood, teaching, and writing books, he found himself "crippled and dependent" and in search of care. When he is first told that his debilitating condition is likely Ménière's Disease but that there is "no reliable test, no reliable treatment, and no consensus on its cause," Cotter quits teaching, stops writing, and commences upon a series of visits to doctors and treatment centers. What begins as an expedition across the country navigating and battling the limits of the American health-care system quickly becomes something else entirely: a journey through hopelessness and adaptation to disability. Along the way, hearing aids become inseparable from his sense of self, as does a growing understanding that the possibilities in his life are narrowing rather than expanding. And with this understanding of his own travails comes reflection on age-old questions around fate, coincidence, and making meaning of inexplicable misfortune. A devastating memoir that sheds urgent, bracingly honest light on both the taboos surrounding disability and the limits of medical science, Losing Music is refreshingly vulnerable and singularly illuminating?a story that will make listeners see their own lives anewRecollections, wrecks, and reflections: my journey from daylight through darkness and beyond
Par Edward Legge. 2022
A revealing chronicle of how a West Virginia youth managed to navigate his way through obstacles posed by life with…
limited vision and eventual total blindness to become successful, both personally and professionally. Describes the importance of a supportive family and special services in his journey, and relates how he transformed from an introvert to an extrovert, thanks to success in higher education and athletics. AdultA celebration of family: stories of parents with disabilities
Par Dave Matheis. 2021
Collected by the Louisville Center for Accessible Living, these 30 short narratives are personal accounts of the triumphs and challenges…
of parenthood by people who happen to have a disability, whether sensory, physical, or cognitive. Some chapters include comments from spouses or children. Introduction by Jason Jones. 2021 AdultVision in the dark: how living in the dark taught me to see the light
Par Andre Watson. 2017
30 years ago, Andre Watson's life changed drastically. Growing up, he was told to "shoot for the stars" and that…
he could be whatever he wanted to be. He was told that he could become a distinguished doctor, an amazing athlete, a profound professor, a fantastic father, a limitless leader, a sensational success. "Just believe it and then you will see it," his encouragers cheered, "You can be whatever you want to be." But what happens when you literally can't See it? At the age of 9 years old, Andre was diagnosed as legally blind. After over a dozen surgeries to save his eyesight, his family and he had to face the inevitable. Andre was going blind. But the story does not stop there. Actually, that is precisely where this interesting and inspiring saga begins. Vision in The Dark is Dr. Andre Watson's story of becoming a Blind Visionary. He is blind, yet he decided to use his life to develop new ways of seeing himself, others, and the world. Andre braved and overcame countless odds. Today he is a licensed clinical psychologist, a world traveler, an award-winning athlete, and a beloved husband, father, and friend. He offers a challenging and awe-inspiring glimpse of life through the eyes of a blind man. With refreshing clarity, unmistakable charm and humor that will make you laugh out loud, Vision in The Dark redefines for us all what it really means to be able to see. 2016. AdultOut of denial: piecing together a fractured life
Par Robert K Anderson. 2008
The memoir of a closeted gay married man who grew up in the conformist Fifties and got stuck in a…
maze of denial. Adult. Some explicit descriptions of sex. Strong languageIluminando: al compás del silencio
Par Luis Felipe Passalacqua. 2020
"A book that takes us beyond any paradigm, dogma or charismatic authority, directing us towards an understanding of the pure…
Self. Between stories, inspiring reflections and revelations, we are immersed in a sea of possibilities for our evolution and freedom as people, as Souls. This interesting and unique compilation of ideas, narratives and affirmations takes us down shadowy paths, where we are encouraged to confront the learned and the intuitive, to visit ourselves without being sly. Luis Felipe, anxious to "see" new seeds germinate on the fertile surface of the conscience of all those who are not afraid to evolve, offers us several paths. His firm, palpable push invites us to explore with curiosity an infinite and permanent reality. A provocative invitation to enjoy his astonishing worldview and life perspective." -- Translation provided by NLSSeeing clearly: a memoir of vision loss, emotional blindness, and finding my true self
Par Christopher T Monnette. 2022
As his field of vision shrinks, Chris's sense of self blurs around the edges. Once an active person who loved…
to fly airplanes, ride motorcycles, and ski, he becomes increasingly dependent on others for even the most basic tasks and is left with no choice but to embrace the vulnerability he has so long avoided. In doing so, he is able to take ownership of his mistakes, find true intimacy, and create a life of abundance on the other side of fear. Adult. Some strong languageBeryl: The Making of a Disability Activist
Par Dustin Galer. 2023
The story of a mid-century working-class housewife whose extraordinary physical transformation empowered her to become a dynamic social activist who…
fueled a movement to create a more inclusive future for people with disabilities.Beryl: The Making of a Disability Activist
Par Dustin Galer. 2023
The story of a mid-century working-class housewife whose extraordinary physical transformation empowered her to become a dynamic social activist who…
fueled a movement to create a more inclusive future for people with disabilities.Creativity Explored celebrates its 40th anniversary with a collection of powerful artwork and perspectives from its talented studio artists.This vibrant…
book uplifts the voices of the artists of Creativity Explored, a nonprofit that gives people with developmental disabilities the opportunity to express themselves through art and share their work with audiences from their local community and in the contemporary art world.This curated collection features more than one hundred original paintings, drawings, illustrations, and sculptures—as well as quotes and stories from the artists—inviting readers to examine and challenge their perceptions about disability. Some artworks are humorous and blunt, while others are affecting and abstract, speaking to the artistic community's diversity and creativity. This book offers an engaging introduction to person-centered thinking for art lovers or anyone interested in learning about disability justice in a visual way.DEMYSTIFYING DISABILITY: This significant new anthology showcases an array of developmentally disabled artists and organizes their works into thematic chapters, such as "Self Medication," "On the Spectrum," "Yes I Do Think About Sex," and "Our Fears." These chapters provide interesting stylistic juxtapositions and personal reflections that highlight both individual and shared experiences as diverse disabled artists. BEAUTIFUL AND CONTENT RICH: This gorgeous hardcover art book features more than one hundred original artworks in full color, from lively portraits and detailed drawings to abstract paintings and captivating illustrations. Quotes, interviews, personal stories, and artist statements also give readers deeper insight into the artists' creative practices, processes, and rituals. This book is a rich visual trove and source of inspiration for any contemporary art lover. SUPPORT A GREAT CAUSE: Creativity Explored was founded in 1983 with the belief that art is essential to life. This book celebrates the organization's mission and its talented artists after forty years of creating impactful arts and career programs with developmentally disabled artists. This collection is a meaningful way to learn more about Creativity Explored and the diverse community it continues to support today.Perfect for:Art lovers and activistsPeople who admire the mission and work of Creativity ExploredThe disabled community, allies, and educatorsGift seekers for family and friends interested in learning more about disability justiceFans of self-taught artists, folk arts, and "outsider art"Contemporary art anthology and art book collectors#OwnVoices readers and anyone interested in diversifying their contemporary art knowledgeStrong at the Broken Places: Voices of Illness, a Chorus of Hope
Par Richard Cohen. 2008
The bestselling author of Blindsided, Richard M. Cohen spent three years chronicling the lives of five diverse "citizens of sickness":…
Denise, who suffers from ALS; Buzz, whose Christian faith helps him deal with his non-Hodgkin's lymphoma; Sarah, a determined young woman with Crohn's disease; Ben, a college student with muscular dystrophy; and Larry, whose bipolar disorder is hidden within. Differing in age and gender, race and economic status, all five are determined to live life on their own terms. In Strong at the Broken Places, Cohen shares these inspirational and revealing stories, which offer lessons for us all—–on self-determination, on courage in the face of adversity and public ignorance, on keeping hope alive.We are all strong at the broken places—stronger than we think.To Siri with Love: A Mother, Her Autistic Son, and the Kindness of Machines
Par Judith Newman. 2017
A NEW YORK TIMES NOTABLE BOOK OF 2017From the author of the viral New York Times op-ed column "To Siri…
with Love" comes a collection of touching, hilarious, and illuminating stories about life with a thirteen-year-old boy with autism that hold insights and revelations for us all.When Judith Newman shared the story of how Apple’s electronic personal assistant, Siri, helped Gus, her son who has autism, she received widespread media attention and an outpouring of affection from readers around the world. Basking in the afterglow of media attention, Gus told anyone who would listen, "I’m a movie star."Judith’s story of her son and his bond with Siri was an unusual tribute to technology. While many worry that our electronic gadgets are dumbing us down, she revealed how they can give voice to others, including children with autism like Gus—a boy who has trouble looking people in the eye, hops when he’s happy, and connects with inanimate objects on an empathetic level.To Siri with Love is a collection of funny, poignant, and uplifting stories about living with an extraordinary child who has helped a parent see and experience the world differently. From the charming (Gus weeping with sympathy over the buses that would lie unused while the bus drivers were on strike) to the painful (paying $22,000 for a behaviorist in Manhattan to teach Gus to use a urinal) to the humorous (Gus’s insistence on getting naked during all meals, whether at home or not, because he does not want to get his clothes dirty) to the profound (how an automated "assistant" helped a boy learn how to communicate with the rest of the world), the stories in To Siri with Love open our eyes to the magic and challenges of a life beyond the ordinary.Embracing Hope After Traumatic Brain Injury: Finding Eden (After Brain Injury: Survivor Stories)
Par Michael Arthur. 2022
This important book provides a firsthand account of a university professor who experienced traumatic brain injury. It tells the story of…
Michael Arthur, who had recently accepted a position as vice principal of a new high school. After only two weeks on the job, he was involved in a car accident while driving through an intersection in northern Utah. Through his personal account, he takes the reader into the dark interworkings of his mind as he tries to cope with his new reality. He provides insight into how he learned how to process information and even speak without stumbling on his words while also sharing how his significant relationships suffered as he tried to navigate the restless seas of doubt while trying to circumvent his unyielding symptoms. The book is about finding optimism and gaining insight into the struggles of the brain-injured patient and about trying to understand the perspectives of loved ones who can’t quite grasp the idea of an invisible injury. From the sudden onset of garbled speech to the challenges of processing information, the changing dynamic of the author’s life is highlighted to help family members and healthcare workers better understand.The Little Locksmith: A Memoir (Physically Handicapped In Society Ser.)
Par Katharine Hathaway. 2000
This early 20th century memoir of a woman&’s faith in the face of debilitating disease is a &“remarkably un-self-pitying book…
remains poignant and truthful&” (Publishers Weekly). &“You must not miss it . . . It is the kind of book that cannot come into being without great living and great suffering and a rare spirit behind it.&” —The New York Times In 1895, a specialist straps five-year-old Katharine Hathaway, then suffering from spinal tuberculosis, to a board with halters and pulleys in a failed attempt to prevent her from becoming a &“hunchback&” like the &“little locksmith&” who does odd jobs at her family&’s home. Forced to endure her confinement for ten years, Katharine remains immobile until age fifteen, only to find that none of it has prevented her from developing a deformity of her own. The Little Locksmith charts Katharine&’s struggle to transcend physical limitations and embrace her life, her body, and herself. Her spirit and courage prevail as she expands her world far beyond the boundaries prescribed by her family and society: she attends Radcliffe College, forms deep friendships, begins to write, and in 1921, purchases a house of her own that she fashions into a space for guests, lovers, and artists. Revealing and inspirational, The Little Locksmith stands as a testimony to Katharine&’s aspirations and desires—for independence, love, and the pursuit of her art. &“A powerful revelation of spiritual truth&” —The Boston Globe &“Katharine Butler Hathaway . . . was the kind of heroine whose deeds are rarely chronicled . . . [She took] a life which fate had cast in the mold of a frightful tragedy and redesign[ed] it into a quiet, modest work of art.&” —The New YorkerThe Tennis Partner: A Doctor's Story of Friendship and Loss
Par Abraham Verghese. 1998
An unforgettable, illuminating story of how men live and how they survive, from Abraham Verghese, the acclaimed New York Times…
bestselling author of Cutting for Stone and The Covenant of Water, an Oprah's Book Club Pick.“Heartbreaking. . . . Indelible and haunting, [The Tennis Partner] is an elegy to friendship found, and an ode to a good friend lost.”—The Boston GlobeWhen Abraham Verghese, a physician whose marriage is unraveling, relocates to El Paso, Texas, he hopes to make a fresh start as a staff member at the county hospital. There he meets David Smith, a medical student recovering from drug addiction, and the two men begin a tennis ritual that allows them to shed their inhibitions and find security in the sport they love and with each other. This friendship between doctor and intern grows increasingly rich and complex, more intimate than two men usually allow. Just when it seems nothing can go wrong, the dark beast from David’s past emerges once again—and almost everything Verghese has come to trust and believe in is threatened as David spirals out of control.Double Take: A Memoir
Par Kevin Connolly. 2009
“Kevin Connolly has used an unusual physical circumstance to create a gripping work of art. This deeply affecting memoir will…
place him in the company of Jeanette Walls and Augusten Burroughs.” — Sara Gruen, author of Water for Elephants“Charming … Connolly recounts growing up a scrappy Montana kid—one who happened to be born without legs... [Double Take] makes for an empowering read.” — PeopleAs featured on 20/20, NPR, and in the Washington Post: Kevin Connolly is a young man born without legs who travels the world—by skateboard, with his camera—on his “Rolling Exhibition,” snapping pictures of peoples’ reactions to him… and finds out along the way what it truly means to be human.Don't Worry, He Won't Get Far on Foot
Par John Callahan. 2018
Now a major motion picture directed by Gus Van Sant and starring Joaquin Phoenix, Jonah Hill, and Rooney MaraFeaturing more than…
60 of Callahan's original cartoons“When people laugh like hell and then say, ‘That’s not funny,’ you can be pretty sure they’re talking about John Callahan.”— P.J. O’RourkeIn 1972, at the age of 21, John Callahan was involved in a car crash that severed his spine and made him a quadriplegic. A heavy drinker since the age of 12 (alcohol had played a role in his crash), the accident could have been the beginning of a downward spiral. Instead, it sparked a personal transformation. After extensive physical therapy, he was eventually able to grasp a pen in his right hand and make rudimentary drawings. By 1978, Callahan had sworn off drinking for good, and begun to draw cartoons.Over the next three decades, until his death in 2010, Callahan would become one of the nation’s most beloved—and at times polarizing—cartoonists. His work, which shows off a wacky and sometimes warped sense of humor, pokes fun at social conventions and pushes boundaries. One cartoon features Christ at the cross with a thought bubble reading “T.G.I.F.” In another, three sheriffs on horseback approach an empty wheelchair in the desert. “Don’t worry,” one sheriff says to another, “He won’t get far on foot.”Don’t Worry, He Won’t Get Far on Foot recounts Callahan’s life story, from the harrowing to the hilarious. Featuring more than 60 of Callahan’s cartoons, it’s a compelling look at art, addiction, disability, and fame. A film adaptation scheduled for 2018, starring Joaquin Phoenix as John Callahan, will bring fresh attention to this underappreciated classic.One More Theory About Happiness: A Memoir
Par Paul Guest. 2010
“In these lyrical, searing pages, Guest manages to break our hearts and put them back together again.”—Ann HoodIn the tradition…
of Lucy Grealy’s Autobiography of a Face, One More Theory About Happiness is a bold and original memoir from the acclaimed, Whiting Award-winning poet Paul Guest, author of My Index of Horrifying Knowledge. A remarkable account of the accident that left him a quadriplegic, and his struggle to find independence, love, and a life on his own terms, One More Theory About Happiness has been praised by Charles Bock, author of Beautiful Children, as, “Smart and honest and clear eyed and above all, humane.”