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Sitting Pretty: The View from My Ordinary Resilient Disabled Body
Par Rebekah Taussig. 2020
A memoir-in-essays from disability advocate and creator of the Instagram account @sitting_pretty Rebekah Taussig, processing a lifetime of memories to…
paint a beautiful, nuanced portrait of a body that looks and moves differently than most.Growing up as a paralyzed girl during the 90s and early 2000s, Rebekah Taussig only saw disability depicted as something monstrous (The Hunchback of Notre Dame), inspirational (Helen Keller), or angelic (Forrest Gump). None of this felt right; and as she got older, she longed for more stories that allowed disability to be complex and ordinary, uncomfortable and fine, painful and fulfilling.Writing about the rhythms and textures of what it means to live in a body that doesn’t fit, Rebekah reflects on everything from the complications of kindness and charity, living both independently and dependently, experiencing intimacy, and how the pervasiveness of ableism in our everyday media directly translates to everyday life. Disability affects all of us, directly or indirectly, at one point or another. By exploring this truth in poignant and lyrical essays, Taussig illustrates the need for more stories and more voices to understand the diversity of humanity. Sitting Pretty challenges us as a society to be patient and vigilant, practical and imaginative, kind and relentless, as we set to work to write an entirely different story.What the **** is Normal?!
Par Francesca Martinez. 2014
If you grow up in a world where wrinkles are practically illegal, going bald is cause for a mental breakdown,…
and women over size zero are encouraged to shoot themselves (immediately), what the hell do you do if you’re, gasp … DISABLED? Whatever body you’re born into, the pressure to be normal is everywhere. But have you ever met a normal person? What do they look like? Where do they live? What do they eat for breakfast?And what the **** does normal mean anyway?This is the award-winning wobbly comedian Francesca Martinez’s funny, personal, and universal story of how she learned to stick two shaky fingers up to the crazy expectations of a world obsessed with being ‘normal’.The astonishing true story of trust, pain, becoming lost, and finding a way back to yourself despite it all'An intimate…
preservation of a moment in time, full of personality' THE TIMES__________Life is beautiful - even in the dark . . .Oliver Mol was happily drifting through his twenties when the migraine exploded in his head.Suddenly, he could barely function. He felt marooned. Nothing helped. Yet he was desperate to save himself.Then he found the trains. The job of train guard has intense moments of strict, regimented activity in between periods of calm serenity. It was just what Oliver needed. Not only could he do this, but also it might be a way out.Train Lord is the story of Oliver's extraordinary recovery. A journey back into the light . . .__________'Tender, vital and quietly hopeful: a tale of remaking' Guardian'Rude, raw, visceral, painful and wildly funny' Saga 'Intense and humble, Train Lord won my heart' Australian Book ReviewAgainst Extraction: Indigenous Modernism in the Twin Cities
Par Matt Hooley. 2024
In Against Extraction Matt Hooley traces a modern tradition of Ojibwe invention in Minneapolis and St. Paul from the mid-nineteenth…
century to the present as that tradition emerges in response to the cultural legacies of US colonialism. Hooley shows how Indigenous literary and visual art modernisms challenge the strictures of everyday life and question the ecological, political, and cultural fantasies that make multivalent US colonialism seem inevitable. Hooley analyzes literature and art by Louise Erdrich, William Whipple Warren, David Treuer, George Morrison, and Gerald Vizenor in relation to histories of Indigenous dispossession and occupation, enslavement and Black life, and environmental harm and care. He shows that historical narratives of these cities are intimately bound up with the violence of colonial systems of extraction and that concepts like Indigeneity and sovereignty extend beyond treaty-granted promises of political control. These works, created in opposition and proximity to the extraction of cultural, political, and territorial resources, demonstrate how Indigenous claims to life and land matter to rethinking and unmaking the social and ecological devastations of the colonial world.But Everyone Feels This Way: How an Autism Diagnosis Saved My Life
Par Paige Layle. 2024
Autism acceptance activist and TikTok influencer Paige Layle shares her deeply personal journey to diagnosis and living life autistically. &“For far…
too long, I was told I was just like everyone else. But knew it couldn&’t be true. Living just seemed so much harder for me. This wasn&’t okay. This wasn&’t normal. This wasn&’t functioning. And it certainly wasn&’t fine.&” Paige Layle was normal. She lived in the countryside with her mom, dad, and brother Graham. She went to school, hung out with friends, and all the while everything seemed so much harder than it needed to be. A break in routine threw off the whole day. If her teacher couldn't answer &“why&” in class, she dissolved into tears, unable to articulate her own confusion or explain her lack of control. But Paige was normal. She smiled in photos, picked her feet up when her mom needed to vacuum instead of fleeing the room, and earned high grades. She had friends and loved to perform in local theater productions. It wasn&’t until a psychiatrist said she wasn&’t doing okay, that anyone believed her. In But Everyone Feels This Way, Paige Layle shares her story as an autistic woman diagnosed late. Armed with the phrase &“Autism Spectrum Disorder&” (ASD), Paige challenges stigmas, taboos, and stereotypes while learning how to live her authentic, autistic life.A Life Impossible: Living with ALS: Finding Peace and Wisdom Within a Fragile Existence
Par Steve Gleason, Jeff Duncan. 2024
From NFL player Steve Gleason, a powerful, inspiring memoir of love, heartbreak, resilience, family, and remarkable triumph in the face…
of ALSIn 2011, three years after leaving the NFL, Steve Gleason was diagnosed with ALS, a terminal disease that takes away the ability to move, talk, and breathe. Doctors gave him three years to live. He was thirty-three years old. As Steve says, he is now ten years past his expiration date.His memoir is the chronicle of a remarkable life, one filled with optimism and joy, despite the trauma and pain and despair he has experienced. Writing using eye-tracking technology, Gleason covers his pre-ALS life through the highs and lows of his NFL career with the New Orleans Saints, where he made one of the most memorable plays in Saints history, leading to a victory in the first post-Katrina home game, uplifting the city, making him a hero, and reflected in a nine-foot bronze statue outside the Superdome. Then came his heartbreaking diagnosis. Gleason lost all muscle function, he now uses Stephen Hawking-like technology to communicate, and breathes with the help of a ventilator. This book captures Gleason and his wife Michel&’s unmatched resilience as they reinvent their lives, refuse to succumb to despair, and face his disease realistically and existentially.This unsparing portrait argues that a person's true strength does not reside solely in one&’s body but also in the ability to face unfathomable adversity and still be able to love and treasure life.Disability Intimacy: Essays on Love, Care, and Desire
Par Edited by Alice Wong. 2024
The much-anticipated follow up to the groundbreaking anthology Disability Visibility: another revolutionary collection of first-person writing on the joys and…
challenges of the modern disability experience, and intimacy in all its myriad forms.What is intimacy? More than sex, more than romantic love, the pieces in this stunning and illuminating new anthology offer broader and more inclusive definitions of what it can mean to be intimate with another person. Explorations of caregiving, community, access, and friendship offer us alternative ways of thinking about the connections we form with others—a vital reimagining in an era when forced physical distance is at times a necessary norm. But don't worry: there's still sex to consider—and the numerous ways sexual liberation intersects with disability justice. Plunge between these pages and you'll also find disabled sexual discovery, disabled love stories, and disabled joy. These twenty-five stunning original pieces—plus other modern classics on the subject, all carefully curated by acclaimed activist Alice Wong—include essays, photo essays, poetry, drama, and erotica: a full spectrum of the dreams, fantasies, and deeply personal realities of a wide range of beautiful bodies and minds. Disability Intimacy will free your thinking, invigorate your spirit, and delight your desires.Birds through Indigenous Eyes: Native Perspectives on Birds of the Eastern Woodlands
Par Dennis Gaffin. 2024
An intimate and personal account of the profound roles birds play in the lives of some Indigenous peopleFor many hours…
over a period of years, white anthropologist Dennis Gaffin and two Indigenous friends, Michael Bastine and John Volpe, recorded their conversations about a shared passion: the birds of upstate New York and southern Ontario. In these lively, informal talks, Bastine (a healer and naturalist of Algonquin descent) and Volpe (a naturalist and animal rehabilitator of Ojibwe and Métis descent) shared their experiences of, and beliefs about, birds, describing the profound spiritual, psychological, and social roles of birds in the lives of some Indigenous people. Birds through Indigenous Eyes presents highlights of these conversations, placing them in context and showing how Native understandings of birds contrast with conventional Western views.Bastine and Volpe bring to life Algonquin, Ojibwe, and Haudenosaunee (Iroquois) beliefs about birds. They reveal how specific birds and bird species are seamlessly integrated into spirituality and everyday thought and action, how birds bring important messages to individual people, how a bird species can become associated with a person, and how birds provide warnings about our endangered environment. Over the course of the book, birds such as the house sparrow, Eastern phoebe, Northern flicker, belted kingfisher, gray catbird, cedar waxwing, and black-capped chickadee are shown in a new light—as spiritual and practical helpers that can teach humans how to live well.An original work of ethno-ornithology that offers a rare close-up look at some Native views on birds, Birds through Indigenous Eyes opens rich new perspectives on the deep connections between birds and humans.The Education of Clarence Three Stars: A Lakota American Life
Par Philip Burnham. 2024
In The Education of Clarence Three Stars Philip Burnham tells the life story of the remarkable Packs the Dog, a…
member of the Minneconjou Lakotas who was born in 1864 east of the Black Hills. His father, Yellow Knife, died when the boy was five, and the family eventually enrolled at Pine Ridge Agency with the Oglalas under an uncle&’s name, Three Stars. In 1879 Packs the Dog joined the first class of Indian students to be admitted to the Carlisle Indian Industrial School. An enthusiastic student, Clarence Three Stars, as he would come to be known, was one of five Lakota children who volunteered to stay at Carlisle after the three-year plan of instruction was finished—though he eventually left the school in frustration. Three Stars returned to Pine Ridge and married Jennie Dubray, another Carlisle veteran, and they had seven children. The life of Lakota advocate Three Stars spanned a time of dramatic change for Native Americans, from the pre-reservation period through the Dawes Act of 1887 until just before the Indian Reorganization Act of 1934. Three Stars was a teacher, interpreter, catechist, lawyer, and politician who lived through the federal policy of American Indian assimilation in its many guises, including boarding school education, religious conversion, land allotment, and political reorganization. He used the fundamentals of his own boarding school education to advance the welfare of the Oglala Lakota people, even when his efforts were deemed threatening or subversive. His dedication to justice, learning, and self-governance informed a distinguished career of classroom excellence and political advocacy on his home reservation of Pine Ridge.Cast Out of Eden: The Untold Story of John Muir, Indigenous Peoples, and the American Wilderness
Par Robert Aquinas McNally. 2024
John Muir is widely and rightly lauded as the nature mystic who added wilderness to the United States&’ vision of…
itself, largely through the system of national parks and wild areas his writings and public advocacy helped create. That vision, however, came at a cost: the conquest and dispossession of the tribal peoples who had inhabited and managed those same lands, in many cases for millennia. Muir argued for the preservation of wild sanctuaries that would offer spiritual enlightenment to the conquerors, not to the conquered Indigenous peoples who had once lived there. &“Somehow,&” he wrote, &“they seemed to have no right place in the landscape.&”Cast Out of Eden tells this neglected part of Muir&’s story—from Lowland Scotland and the Wisconsin frontier to the Sierra Nevada&’s granite heights and Alaska&’s glacial fjords—and his take on the tribal nations he encountered and embrace of an ethos that forced those tribes from their homelands. Although Muir questioned and worked against Euro-Americans&’ distrust of wild spaces and deep-seated desire to tame and exploit them, his view excluded Native Americans as fallen peoples who stained the wilderness&’s pristine sanctity. Fortunately, in a transformation that a resurrected and updated Muir might approve, this long-standing injustice is beginning to be undone, as Indigenous nations and the federal government work together to ensure that quintessentially American lands from Bears Ears to Yosemite serve all Americans equally.They Came but Could Not Conquer: The Struggle for Environmental Justice in Alaska Native Communities
Par Diane J. Purvis. 2024
As the environmental justice movement slowly builds momentum, Diane J. Purvis highlights the work of Indigenous peoples in Alaska&’s small…
rural villages, who have faced incredible odds throughout history yet have built political clout fueled by vigorous common cause in defense of their homes and livelihood. Starting with the transition from Russian to American occupation of Alaska, Alaska Natives have battled with oil and gas corporations; fought against U.S. plans to explode thermonuclear bombs on the edge of Native villages; litigated against political plans to flood Native homes; sought recompense for the Exxon Valdez oil spill disaster; and struggled against the federal government&’s fishing restrictions that altered Native paths for subsistence. In They Came but Could Not Conquer Purvis presents twelve environmental crises that occurred when isolated villages were threatened by a governmental monolith or big business. In each, Native peoples rallied together to protect their land, waters, resources, and a way of life against the bulldozer of unwanted, often dangerous alterations labeled as progress. In this gripping narrative Purvis shares the inspiring stories of those who possessed little influence over big business and regulations yet were able to protect their traditional lands and waterways anyway.The oil and natural gas boom in pre–World War I Oklahoma brought unbelievable wealth to thousands of tribal citizens in…
the state on whose lands these minerals were discovered. However, as Angie Debo recognizes in her seminal study of the period, And Still the Waters Run, and, more recently, as David Grann does in Killers of the Flower Moon, this affluence placed Natives in the crosshairs of unscrupulous individuals. As a result, this era was also marked by two of the most heinous episodes of racial violence in the state&’s history: the Tulsa Race Massacre of 1921 and the Osage Murders between 1921 and 1925. In Resisting Oklahoma&’s Reign of Terror Joshua Clough details the responses of one largely forgotten Native organization—the Society of Oklahoma Indians (SOI)—to the violence and pillaging of tribal resources during the 1920s. Clough provides historical understanding of its formation and its shared values of intertribal unity, Native suffrage, and protection of Native property. He also reveals why reform efforts were nearly impossible in 1920s Oklahoma and how this historical perspective informs today&’s conflicts between the state and its Indigenous inhabitants. Through this examination of the SOI, Clough fills the historiographic gap regarding formal Native resistance between the dissolution of the national Society of American Indians in 1923 and the formation of the National Congress of American Indians in 1944. Dismissed or overlooked for a century as an inconsequential Native activist organization, the history of the SOI, when examined carefully, reveals the sophistication and determination of tribal members in their struggle to prevent depredations on their persons and property.In Bribed with Our Own Money David R. M. Beck analyzes the successes and failures of Indigenous nations&’ opposition to…
federal policy in the 1950s and 1960s. Focusing on case studies from six Native nations, Beck recounts how the U.S. government coerced American Indian nations to accept termination of their political relationship with the United States by threatening to withhold money that belonged to the tribes. Termination was the continuation—and, federal officials hoped, the culmination—of more than a century of policy initiatives intended to end the political relationship between Indian tribal nations and the federal government. Termination was also intended to assimilate American Indian individuals into the country&’s social and economic culture and to remove the remainder of reservation lands from federal trust. American Indians hoped to gain greater opportunities of self-governance and self-determination, but they wanted to do so under the protection of the federal trust relationship.Bribed with Our Own Money analyzes both successful and unsuccessful efforts of Native nations to oppose this policy within the larger context of long-standing federal abuse of tribal funds. It is the first book to view federal termination efforts grounded in bribery for what they were: a form of coercion.The Boy Who Promised Me Horses
Par David Joseph Charpentier. 2024
&“He tried to outrun a train,&” Theodore Blindwoman told David Joseph Charpentier the night they found out about Maurice Prairie…
Chief&’s death. When Charpentier was a new teacher at St. Labre Indian School in Ashland, Montana, Prairie Chief was the first student he met and the one with whom he formed the closest bonds. From the shock of moving from a bucolic Minnesota college to teach at a small, remote reservation school in eastern Montana, Charpentier details the complex and emotional challenges of Indigenous education in the United States. Although he intended his teaching tenure at St. Labre to be short, Charpentier&’s involvement with the school has extended past thirty years. Unlike many white teachers who came and left the reservation, Charpentier has remained committed to the potentialities of Indigenous education, motivated by the early friendship he formed with Prairie Chief, who taught him lessons far and wide, from dealing with buffalo while riding a horse to coping with student dropouts he would never see again. Told through episodic experiences, the story takes a journey back in time as Charpentier searches for answers to Prairie Chief&’s life. As he sits on top of the sledding hill near the cemetery where Prairie Chief is buried, Charpentier finds solace in the memories of their shared (mis)adventures and their mutual respect, hard won through the challenges of educational and cultural mistrust.The Girl in the Photograph: The True Story of a Native American Child, Lost and Found in America
Par Byron L. Dorgan. 2019
Through the story of Tamara, an abused Native American child, North Dakota Senator Byron Dorgan describes the plight of many…
children living on reservations—and offers hope for the future. On a winter morning in 1990, U.S. Senator Byron Dorgan of North Dakota picked up the Bismarck Tribune. On the front page, a small Native American girl gazed into the distance, shedding a tear. The headline: "Foster home children beaten—and nobody's helping." Dorgan, who had been working with American Indian tribes to secure resources, was upset. He flew to the Standing Rock Indian Reservation to meet with five-year-old Tamara who had suffered a horrible beating at a foster home. He visited with Tamara and her grandfather and they became friends. Then Tamara disappeared. And he would search for her for decades until they finally found each other again. This book is her story, from childhood to the present, but it's also the story of a people and a nation. More than one in three American Indian/Alaskan Native children live in poverty. AI/AN children are disproportionately in foster care and awaiting adoption. Suicide among AI/AN youth ages 15 to 24 is 2.5 times the national rate. How has America allowed this to happen? As distressing a situation as it is, this is also a story of hope and resilience. Dorgan, who founded the Center for Native American Youth (CNAY) at the Aspen Institute, has worked tirelessly to bring Native youth voices to the forefront of policy discussions, engage Native youth in leadership and advocacy, and secure and share resources for Native youth. You will fall in love with this heartbreaking story, but end the book knowing what can be done and what you can do.The Shaking Woman, or A History of My Nerves
Par Siri Hustvedt. 2009
In this unique neurological memoir Siri Hustvedt attempts to solve her own mysterious conditionWhile speaking at a memorial event for…
her father in 2006, Siri Hustvedt suffered a violent seizure from the neck down. Despite her flapping arms and shaking legs, she continued to speak clearly and was able to finish her speech. It was as if she had suddenly become two people: a calm orator and a shuddering wreck. Then the seizures happened again and again. The Shaking Woman or A History of My Nerves tracks Hustvedt's search for a diagnosis, one that takes her inside the thought processes of several scientific disciplines, each one of which offers a distinct perspective on her paroxysms but no ready solution. In the process, she finds herself entangled in fundamental questions: What is the relationship between brain and mind? How do we remember? What is the self? During her investigations, Hustvedt joins a discussion group in which neurologists, psychiatrists, psychoanalysts, and brain scientists trade ideas to develop a new field: neuropsychoanalysis. She volunteers as a writing teacher for psychiatric in-patients at the Payne Whitney clinic in New York City and unearths precedents in medical history that illuminate the origins of and shifts in our theories about the mind-body problem. In The Shaking Woman, Hustvedt synthesizes her experience and research into a compelling mystery: Who is the shaking woman? In the end, the story she tells becomes, in the words of George Makari, author of Revolution in Mind, "a brilliant illumination for us all."