Freedom from Fred: Living with Friedreich's Ataxia
Science and medicine biography, Biography of persons with disabilities, Journals and memoirs, Medicine
Synthetic audio, Automated braille
Summary
On the night of a debutante ball, events set in motion an emotive and intimate portrayal of the revelation of a life changing condition. Anna Magdalene plunges deep into a personal maelstrom that is both tender and hard-hitting as it… explores the hidden recesses of social understanding of her condition, Friedreich's Ataxia. On the quest for healing, Anna embarks on brave and sometimes strange journeys of enlightenment to free herself from the bonds of her condition. In one of these adventures she stumbles on an unexpected answer that brings a true light in the most disarming way, changing her whole view of what freedom is. Simultaneously, she discovers a mutual hope to join life again and a way to live with her condition, 'Fred', while she must. (Blurb by Anna's Carers, Pierre and Lee Figueira)