A face for Picasso: coming of age with Crouzon syndrome
Déficiences, Biographies, Santé et médecine, Médecine
Braille avec transcription humaine
Résumé
Ariel Henley recounts her own and her twin sister's experience living with Crouzon syndrome, a rare condition where the bones in the head fuse prematurely. Henley discusses the surgeries, the strength and resilience needed while dealing with the emotional toll… of navigating life with a facial disfigurement. For senior high and older readers. 2021